Intended for everyone wanting to connect with experts in the field of Rett syndrome especially families, caregivers, educators, clinicians, and therapists. Attendees will enjoy a rich and informative day of topics and discussion that will cover: research updates, medical and therapeutic interventions, Massachusetts specific programs & services, school and communication strategies.


WHEN | Saturday, June 22, 2019

WHERE | Boston Children's Hospital 1 Autumn Street, Boston MA 02215
                 Auditorium A&B (located in basement)

TIME | 8:30 a.m. - 5:00 p.m.

Keynote speakers:

  • Michela Fagiolini, PhD, Researcher, Harvard Medical School and Boston Children’s Hospital
  • Jeannie Lee, MD, PhD, HHMI Researcher, Harvard Medical School, Massachusetts General Hospital
  • David Lieberman, MD, PhD, Medical Director, Rett Clinic, Boston Children’s Hospital
  • Ann Bergin, MB, ScM, MRCP (UK) Epilespy Center, Boston Children’s Hospital
  • Lindsay Swanson, MS, CGC, Genetic Counselor, Rett Clinic, Boston Children's Hospital
  • Suzanne Geerts, MS, RD, LD Nutritionist, UAB Rett Clinic
  • Kate Ahern, Assistive Technology Specialist and Special Education Teacher
  • Dale Gardner-Fox, Assistive Tech Specialist at Collaborative for Education Services
  • Paige Nues, Director of Family Empowerment,

Program Subject to Change

RSAM will host an onsite networking reception immediately following.


$10/per person. Diagnosed children are FREE.


Presentations, interactive panel discussion, continental breakfast and lunch, evening reception



For questions or more information contact:
Paige Nues at
Grace Bazin at BCH (614) 355-1495 or
Ariane McMahan of RSAM at


$8/day - 1 block from the building: 375 Longwood Ave, Boston MA 02215


This is a long day for small children. No childcare is provided. A quiet room will be available for individuals with Rett syndrome. We recommend securing child care for the day.

Hotel Information

Homewood Suites
Courtyard Marriott


This day is made possible by a generous grant from the following