Friends & Family of the Rett syndrome community,

At, the health and well-being of those in our community are of utmost importance. Due to the COVID-19 pandemic, we are following the recommendations of the CDC and post-poning or cancelling our upcoming in-person events. At this time, we have decided to cancel the 8th Annual Charamella Golf Tournament for 2020. We apologize for the inconvenience and will be happy to refund any golfers/sponsors.

The weeks and months ahead will be unique and challenging but are also filled with opportunity. We believe we will as a stronger community — and will be closer than ever to achieving our mission to create a world without Rett syndrome.

During this challenging time, we understand that support of our mission will vary from person to person. We are committed to providing tools to empower families while fighting to transform their tomorrow through accelerated research. We are grateful for all past, present, and future support of our vision to create a world without Rett syndrome.

We appreciate your support in honor of Mark and the Charamella family.

Be well & stay healthy,

The Team at