Newly Diagnosed

Contact IRSF

International Rett Syndrome Foundation
4600 Devitt DriveCincinnati, OH 45246 USA

Toll free: 1-800-818-7388
Fax: 1-513-874-2520

Please fill out our contact form.

How is Rett Diagnosed?

What is Rett syndrome?

After the Diagnosis

We're here to help! IRSF has set up a Regional Representative Program to provide emotional support, information and resources to families affected by Rett syndrome. If you're in the United States, please contact the Rep in your state TODAY!  If you are not located in the US, please contact the organization closest to you.

The Rett Syndrome Handbook

This is the book that every parent, grandparent, teacher, therapist, doctor, and caregiver needs to have! Anyone in the life of a loved one with Rett syndrome should own a copy of this amazing book (called by many the "Rett Syndrome Bible").

Find Support

We would like to provide you with IRSF's resources as we know how difficult it is to receive the diagnosis. Please enter your information and a member of our Family Support Team will contact you shortly.