Rett Syndrome Clinics

Clinics

USA

Alabama

Dr. Alan Percy
Director, Rett Clinic and Research Center
UAB - Civitan International Research Center
1530 - 3rd Avenue South CIRC 320
Birmingham, Alabama 35294-0021
Contact: Jerry Childers 800-822-2472, Ext 7

California

Dr. Mary Jones
Director, Katie's Clinic for Rett Syndrome
Developmental and Behavioral Pediatrics
Children's Hospital and Research Center in Oakland (CA)
5220 Claremont Ave
Oakland, CA 94618
Contact: Erica Robertson, Clinic Coordinator
510-428-3885, Ext 2302

Kathryn Smith, RN, DrPH
Rett Clinic
USC University Center of Excellence in Developmental Disabilities
Children's Hospital Los Angeles
4650 Sunset Blvd., MS#53
Los Angeles, CA 90027
Contact Kathy Smith: 323-361-8301
For appointments call: 323-361-3849

Colorado

Dr. Tim Benke
Director, Rett Syndrome Clinic
Depts. of Pediatrics, Neurology and Pharmacology
University of Colorado School of Medicine/Colorado Children’s Hospital
12800 East 19th Ave
Aurora, CO 80045
Contact: Kate Atkin, RN, clinic coordinator
kate.atkin@childrenscolorado.org
rettclinic@childrenscolorado.org
720-777-4363

Delaware

Dr. Carolyn Schanen
Director, Center for Applied Clinical Genomics
Nemours Alfred I duPont Hospital for Children
1600 Rockland Road
Wilmington, DE 19803
302-651-6804
Contact: Kathy Sewell
kasewell@nemours.org

Florida

Dr. Anthony Perszyk
Medical Director, International Rett Clinic at The University of Florida Jacksonville
UF Pediatric Multispecialty Center
841 Prudential Drive, Suite 1900
Jacksonville, FL  32207
Contact: Robin Allen-Paris, Clinic Coordinator
904-383-1864

Maryland

Dr. Sakkubai Naidu
Director, Rett Syndrome Research Project
Department of Neurogenetics
Kennedy Krieger Institute, John’s Hopkins School of Medicine
707 North Broadway
Baltimore, MD 21205
800-873-3377, Ext. 2778 or 443-923-2778

Massachusetts

Dr. Walter Kaufmann
Director, Rett Syndrome Program
Children's Hospital Boston/Harvard Medical School
Fegan 11
300 Longwood Avenue
Boston, MA 02115
Contact: Molly Valle, Program Administrator
617-355-8994

Minnesota

Dr. Raymond Tervo (pediatric services)
Dr. Art Beisang (pediatric services)
Dr. Robert Wagner (adult services)
Rett Syndrome Services
Gillette Children’s Specialty Healthcare
200 E. University Ave.
St. Paul, MN 55101
Contact: Jason Kelecic 651-312-3176 or 800-709-4040
Resource Nurse La’tosia Erickson 651-229-3897
Gillette Children’s Specialty Healthcare 130.54 Kb

New York

Dr. Aleksandra Djukic
DDirector, Tri-State Rett Syndrome Center
Albert Einstein College of Medicine
Montefiore Medical Center
Children’s Hospital at Montefiore (CHAM)
3415 Bainbridge Ave, 4th Floor
Bronx, NY 10467
Jennifer Lopez, Clinic Coordinator
Phone: 347-640-2671 or 718-920-4378
rett@montefiore.org

Oregon

Dr. Mario Petersen
Director Rett Syndrome Clinic
Child Development and Rehabilitation Center
Oregon Health and Sciences University
P.O. Box 574
Portland, OR 97207
Contact: 800-452-3563 or 503-494-8095

Dr. Janice Cockrell
Director Rett Syndrome Clinic
The Children's Hospital at Legacy Emanuel
2801 N Gantenbein, Suite 2225
Portland, OR 97227
Phone: 503-413-2948
Fax: 503-413-4719
Contact: Kristin Mason

Texas

Dr. Daniel Glaze
Medical Director
The Blue Bird Circle Rett Center
Baylor College of Medicine
6621 Fannin, CC 1250
Houston, TX 77030
1-888-430-7388(RETT) or 832-822-7388
Contact: Judy Barrish JOBarris@TexasChildrensHospital.org

Melissa Ramocki, M.D., Ph.D. (MECP2 Duplication Syndrome Clinic)
Baylor College of Medicine and
Texas Children's Hospital
6701 Fannin St. Suite 1250
Houston, Texas 77030
ph: 832-822-5046

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Canada

South Western Ontario Rett Syndrome Clinic, Canada

Dr. Victoria Siu, Medical Lead
Dorothy Harris, Nurse Clinician
Rett Syndrome Clinic
Thames Valley Children's Centre
779 Base Line Road East
London, Ontario N6C 5Y6
Canada
Primary Contact: Dorothy Harris
519-685-8700, Ext 53406
dorothy.harris@tvcc.on.ca

Please be aware that this clinic can only accept referrals for children (not adults) from within the catchment area of Southwestern Ontario.

Children’s Hospital of Eastern Ontario Rett Syndrome Clinic

Dr Peter Humphreys
Director, CHEO Rett Syndrome Clinic
Division of Neurology, Clinic C9
Children’s Hospital of Eastern Ontario
401 Smyth Road
Ottawa, ON, K1H8L1
Contact: Renee Brannan, Nurse Coordinator
Rett Syndrome Clinic Tel. 613-737-7600, Ext 2159