Rett Syndrome Clinics




Dr. Alan Percy
Director, Rett Clinic and Research Center
UAB - Civitan International Research Center
1530 - 3rd Avenue South CIRC 320
Birmingham, Alabama 35294-0021
Contact: Jerry Childers 800-822-2472, Ext 7


Dr. Mary Jones
Director, Katie's Clinic for Rett Syndrome
Developmental and Behavioral Pediatrics
Children's Hospital and Research Center in Oakland (CA)
5220 Claremont Ave
Oakland, CA 94618
Contact: Erica Robertson, Clinic Coordinator
510-428-3885, Ext 2302

Kathryn Smith, RN, DrPH
Rett Clinic
USC UCEDD Rett Syndrome Clinic
Children's Hospital Los Angeles
4650 Sunset Blvd., MS#53
Los Angeles, CA 90027
Contact Kathy Smith: 323-361-8301
For appointments call: 323-361-3849


Dr. Tim Benke
Director, Rett Syndrome Clinic
Depts. of Pediatrics, Neurology and Pharmacology
Children’s Hospital Colorado
13123 East 16th Avenue, #B-155
Aurora, CO 80045
Contact: Tristen Dinkel, RN, Clinic Coordinator


Dr. Anthony Perszyk
Medical Director, International Rett Clinic at The University of Florida Jacksonville
UF Pediatric Multispecialty Center
841 Prudential Drive, Suite 1900
Jacksonville, FL  32207
Contact: Robin Allen-Paris, Clinic Coordinator


Dr. Sakkubai Naidu
Director, Rett Syndrome Research Project
Department of Neurogenetics
Kennedy Krieger Institute, John’s Hopkins School of Medicine
707 North Broadway
Baltimore, MD 21205
800-873-3377, Ext. 2778 or 443-923-2778


Dr. Walter Kaufmann
Director, Rett Syndrome Program
Children's Hospital Boston/Harvard Medical School
Fegan 11
300 Longwood Avenue
Boston, MA 02115
Contact: Molly Valle, Program Administrator


Dr. Raymond Tervo (pediatric services)
Dr. Art Beisang (pediatric services)
Dr. Robert Wagner (adult services)
Rett Syndrome Services
Gillette Children’s Specialty Healthcare
200 E. University Ave.
St. Paul, MN 55101
Contact: Jason Kelecic 651-312-3176 or 800-709-4040
Resource Nurse La’tosia Erickson 651-229-3897
Gillette Children’s Specialty Healthcare 130.54 Kb

New York

Dr. Aleksandra Djukic
Director, Tri-State Rett Syndrome Center
Albert Einstein College of Medicine
Montefiore Medical Center
Children’s Hospital at Montefiore (CHAM)
3415 Bainbridge Ave, 4th Floor
Bronx, NY 10467
Jennifer Lopez, Clinic Coordinator
Phone: 347-640-2671 or 718-920-4378


Drs. Shannon Standridge and Patty Manning
Pediatric Neurology and Developmental and Behavioral Pediatrics
Co-Directors, Rett Syndrome Clinic
Cincinnati Children’s Hospital Medical Center
3333 Burnet Avenue
Cincinnati, OH 45229
Contact: Anita Boyer, Administrative Coordinator, 513-636-9214
For appointments call: 513-636-4222 option 1


Dr. Mario Petersen
Director Rett Syndrome Clinic
Child Development and Rehabilitation Center
Oregon Health and Sciences University
P.O. Box 574
Portland, OR 97207
Contact: 800-452-3563 or 503-494-8095

Dr. Janice Cockrell
Director Rett Syndrome Clinic
The Children's Hospital at Legacy Emanuel
2801 N Gantenbein, Suite 2225
Portland, OR 97227
Phone: 503-413-2948
Fax: 503-413-4719
Contact: Kristin Mason


Dr. Daniel Glaze
Medical Director
The Blue Bird Circle Rett Center
Baylor College of Medicine
6621 Fannin, CC 1250
Houston, TX 77030
1-888-430-7388(RETT) or 832-822-7388
Contact: Judy Barrish

Melissa Ramocki, M.D., Ph.D. (MECP2 Duplication Syndrome Clinic)
Baylor College of Medicine and
Texas Children's Hospital
6701 Fannin St. Suite 1250
Houston, Texas 77030
ph: 832-822-5046

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South Western Ontario Rett Syndrome Clinic, Canada

Dr. Victoria Siu, Medical Lead
Dorothy Harris, Nurse Clinician
Rett Syndrome Clinic
Thames Valley Children's Centre
779 Base Line Road East
London, Ontario N6C 5Y6
Primary Contact: Dorothy Harris
519-685-8700, Ext 53406

Please be aware that this clinic can only accept referrals for children (not adults) from within the catchment area of Southwestern Ontario.

Children’s Hospital of Eastern Ontario Rett Syndrome Clinic

Dr Peter Humphreys
Director, CHEO Rett Syndrome Clinic
Division of Neurology, Clinic C9
Children’s Hospital of Eastern Ontario
401 Smyth Road
Ottawa, ON, K1H8L1
Contact: Renee Brannan, Nurse Coordinator
Rett Syndrome Clinic Tel. 613-737-7600, Ext 2159