Symptom Management & Rett Clinics


Health Matters

Rett syndrome is a unique disorder that most often begins to show itself in early childhood. It is primarily discussed as a neurological disorder, or a developmental disorder, associated with loss of acquired skills like speech and hand function. Health and medical issues may not always be the first issues that come to mind. However, there are some medical issues that children with RTT may experience over the course of their lifetime. For parents and caregivers, these can quickly become the most overwhelming and fearful aspects of the syndrome if we don't know what to look for, how to rule-it-in or how to rule-it-out, and how to treat and manage.



In healthy girls as well as girls with RS, puberty begins around the age of 8 when the pituitary gland begins to secrete hormones. These hormones travel through the bloodstream to the ovaries, where they trigger growth and change. The first observable change is breast budding. One breast may start growing before the other, and they may grow at different rates so they may appear unequal in size at first. Eventually, they will be the same size. Next, she develops pubic hair, and later, underarm hair. She goes through a growth spurt and her hips and breasts become more rounded.


Rett Clinics

Click for a comprehensive list of Rett clinics in the U.S. and Canada.