The Regional Representative Program has been established to provide emotional support, information and resources to families affected by Rett syndrome. It is used as a vehicle to promote family gatherings and fundraisers to support IRSF’s mission. It is an integral part of IRSF. The program has greatly expanded over time, closing in on acquiring a Regional Rep for each state in the US.
Links to Rett Syndrome web sites around the world.
Thank you for your interest in the IRSF Regional Representative Program! Each Regional Rep plays an important role in the lives of those affected by Rett syndrome. The Regional Rep team is comprised of compassionate and dedicated individuals who support the families within their state. If you are interested in getting to know and assist families, please apply today!