Annual Conference

IRSF carefully and thoughtfully plans an annual conference for families, caregivers, and allied health professionals. It is the only one of its kind where the parents and professionals of those with Rett syndrome and Related Disorders come together from all over the world, under one roof, to learn the most current recommended care and advocacy strategies for every stage of life, and hear first-hand the latest in research and clinical trials. Even though so many resources today can be accessed online, nothing can replace the face-to-face experience of meeting with experts; hands-on interactions with carefully selected Exhibitors; spending time developing lasting relationships with other parents, attendees and all of us at IRSF.  In addition to being a critical continuing education opportunity for you, it is also a chance for caregivers to relax, recharge your batteries, and have a little fun.  We hold our conference in a different, easily accessible part of the U.S. each year to reduce the travel distances for attendees.

ANNOUNCING:
29th Annual Education and Awareness Conference
June 27 – 29, 2013
Zermatt Resort & Spa
Midway, Utah

Check back in early March 2013 for Program Details and Online Registration. Registration Fees will remain approximately $280/per person which includes all sessions and meals, and does not include hotel rooms or transportation to/from the resort. Negotiated room rates and reservation codes will also be posted late January.

We look forward to seeing you in beautiful, relaxing Midway, Utah. Just steps away from the world-class resort town of Park City, and a short drive from the international Salt Lake City airport.

PAST CONFERENCES:

  • 2012 – “Charting the Course” – World Congress – New Orleans, LA [post conference program pdf]
  • 2011 – “Cheers to Research to Reality” – Boston, MA [post conference program pdf
  • 2010 – “Ain’t No Mountain High Enough” – Colorado Springs, CO [post conference program pdf
  • 2009 – “Celebrating the Torch Within” – 25th Anniversary - Leesburg, VA [post conference program pdf
  • 2008 – “Together We Are Better” – Chicago, IL 
  • 2007 – “Reach Me, Teach Me” – Atlanta, GA 
  • 2006 – “Bridges of Hope” – San Francisco, CA 
  • 2005 – “Trails to Discovery” – San Antonio, TX 
  • 2004 – “Believe in Better Days” – Baltimore, MD 
  • 2003 – “Ship Shape for Caregivers” – Bahamas 
  • 2002 – “Empowerment” – Chicago, IL 
  • 2001 – “Possibilities” – Washington, DC 
  • 2000 – “Hitting the Jackpot” – Las Vegas, NV 
  • 1999 – “Meet Me in St. Louis” – St Louis, MO 
  • 1998 – “Grass Roots” – Charleston, SC 
  • 1997 – “Keeping Afloat” – Bahamas 
  • 1996 – “Spirit of ‘96” – Boston, MA 
  • 1995 – “A Road Less Traveled” – Minneapolis, MN 
  • 1994 – “A Decade of Caring” – Chicago, IL 
  • 1993 – “Stepping Stones” – San Diego, CA 
  • 1992 – “New Horizons” – San Diego, CA 
  • 1991 – “Up, Up and Away” – Denver, CO 
  • 1990 – “Family Ties” – Washington, DC 
  • 1989 – “Hope for Tomorrow” – Washington, DC 
  • 1988 – “Rett Families Conference” – Houston, TX 
  • 1987 – “RS Diagnosis & Management” - Houston, TX 
  • 1985 (November) – “Rett: A New Syndrome” - Baltimore, MD 
  • 1985 (January) – “No Longer Alone” - Baltimore, MD