30th Annual Family Education and Awareness Conference

Westfields Marriott Washington Dulles in Chantilly, VA

Amazing $89 per night hotel room rate secured!  Please make your hotel reservations through our custom event reservation link.

Register for conference, journal, auction and all related activities/programs.


Review the Conference Agenda - check back frequently for real time updates.

Program Highlights:

Keynote Address: Emily Perl Kingsley, author “Welcome to Holland”

Thursday evening:  Registration, Welcome, Dinner, Orientation, Meet and Greet “Crackerbarrels”
Friday session emphasis:  Research, Clinical Trials, Genetics, and Medical/Symptom Management
Saturday session emphasis:  Therapies, School/Education, Communication/Literacy, Quality of Life

Pre-Conference Webinar:  Monday, June 9, 2014  1pm edt / noon cdt / 11am mdt / 10am pdt
“A Primer on Literacy and Communication in Rett Syndrome” by David Koppenhaver, Appalachian State University
Register for this free webinar that will lay the foundation for our Communication and Literacy sessions at conference (Webinar ID: 113-000-123).

Post-Conference Workshop:  “Hands-on Eye Gaze Device Workshop:  Make and Take Page Setups and Common Programming and Uploading How-Tos” with Judy Lariviere, Susan Norwell, and Technical Reps from the top eye-gaze device companies – Sunday, June 29 from 9am – 11am – only $30, separate Registration required. 

Why Attend Conference? View this keynote Welcome from one of our past conferences as an example.

The Helping Hands Keepsake Journal is the closest we come to a Rett syndrome Yearbook – place your message of Hope; advertise a business; make a Tribute to your child or grandchild for all to treasure.  Electronic version will be posted to our website after conference for everyone to enjoy!  Submit by May 26th!

Enter the Opportunity Drawing for a Tobii ATI C-series eye gaze device – need not be present win!

Golf anyone?  If you are interested, Michael Seiler invites you to join him at the Westfields Golf Club on Thursday morning for a group 8am tee time!  Only $99 per player.  Please email Michael at Michael.seiler@mctx.org to RSVP and for details.

Below are important downloads from  last year’s 2013 conference: