30th Annual Family Education and Awareness Conference
"Opening Doors to Discoveries"
June 26-28, 2014
Westfields Marriott Washington Dulles in Chantilly, VA
Amazing $89 per night hotel room rate secured! Please make your hotel reservations through our custom event reservation link which will be accessible soon.
Keynote Address: Emily Perl Kingsley, author “Welcome to Holland”
Thursday evening: Registration, Welcome, Dinner, Orientation, Meet and Greet “Crackerbarrels”
Friday session emphasis: Research, Clinical Trials, Genetics, and Medical/Symptom Management
Saturday session emphasis: Therapies, School/Education, Communication/Literacy, Quality of Life
Additional special events to be announced! Speakers and Program details will be posted soon, but we guarantee what you’ve come to expect from IRSF conferences: top experts, trusted information, and empowerment!
IRSF is carefully and thoughtfully coordinating the annual conference details just for you: families, caregivers, educators and allied health professionals. It is the only one of its kind where parents and professionals of those with Rett syndrome and Related Disorders come together from all over the world, under one roof, to learn the most current recommended care and advocacy strategies for every stage of life, and hear first-hand the latest in research and clinical trials. Even though many resources today can be accessed online, nothing replaces the experience of meeting face-to-face with experts; hands-on interactions with carefully selected exhibitors; and spending time developing lasting relationships with other parents, attendees and all of us at IRSF.
Harnessing the power of collaboration and community, IRSF is proud to partner with the International Foundation for CDKL5 Research (IFCR) and related disorders in some joint sessions of common relevance; meals; receptions; and Respite!
Below are important downloads from last year’s 2013 conference: