Understanding Rett Syndrome

Newly Diagnosed

Getting the diagnosis of Rett syndrome is difficult, but there are many people who are willing to help you, beginning with IRSF. Here are a few places to start.

About Rett Syndrome

Rett syndrome is a unique developmental disorder that is first recognized in infancy and seen almost always in girls, but can be rarely seen in boys.

Living with Rett Syndrome

The goal in selecting the right educational or day program setting for your child should be to provide her with the most stimulating program in the least restrictive environment, taking into account each child's own special needs and personality.

Family Support

FamilyMatters is a series of topical questions posed to various IRSF online Rett communities by the IRSF Family Support Board (FSB). Our goal is to tap into the vast wisdom of parents and caregivers who most often are the best resource for solutions to the practical, common, day-to-day issues, concerns and dilemmas we all face. The community answers will be summarized here for everyone's benefit. 

Get Connected

Connect with the Rett Syndrome Foundation and others in the Rett Syndrome community through social media or join one of IRSF's Support Networks today. IRSF offers numerous support networks in an effort to provide the specific support tailored to the needs of you and your family.

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