Clinics, Trials & Studies

To have your child evaluated at a Rett Syndrome center please contact the following:

Dr. Sarojini Budden MD, FRCPC Director Rett Syndrome Clinic The Children's Hospital at Legacy Emanuel 2801 N Gantenbein, Suite 2225 Portland, OR 97227 Phone: 503-413-4505 Fax: 503-413-4719 Contact: Sue Best, MSW	Dr. Aleksandra Djukic Director, Rett Syndrome Center Albert Einstein College of Medicine Montefiore Medical Center Rett Syndrome Center 111 East 210th Street Bronx, NY 10467 718/920-4378 This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
Dr. Daniel Glaze Medical Director The Blue Bird Circle Rett Center Baylor College of Medicine 6621 Fannin, CC 1250 Houston, TX 77030 1-888-430-RETT (7388) or 713-798-RETT (7388) Contact: Judy Barrish This e-mail address is being protected from spam bots, you need JavaScript enabled to view it	Dr. Mary Jones Director, Katie's Clinic for Rett Syndrome Developmental and Behavioral Pediatrics Children's Hospital and Research Center in Oakland (CA) 5220 Claremont Ave Oakland, CA 94618 Contact: Pat George, Clinic Coordinator 510-428-3885 Ext 2302
Dr. Omar Khwaja Director, Rett Syndrome Program Children's Hospital Boston/Harvard Medical School Fegan 11 300 Longwood Avenue Boston, MA 02115 Contact: Aliscia Kutner, Program Administrator 617-355-8994	Dr. Sakkubai Naidu Director, Rett Syndrome Research Project Department of Neurogenetics Kennedy Krieger Institute, John’s Hopkins School of Medicine 707 North Broadway Baltimore, MD 21205 800-873-3377 ext. 2778 or 443-923-2778
Dr. Alan Percy Director, Rett Clinic and Research Center UAB - Civitan International Research Center 1530 - 3rd Avenue South CIRC 320 Birmingham, Alabama 35294-0021 Contact: Jerry Childers 800-822-2472, ext 7	Dr Mario Petersen Director Rett Syndrome Clinic Child Development and Rehabilitation Center Oregon Health and Sciences University P.O. Box 574 Portland, OR 97207 Contact: Alexis Lewis 1-503-494-0325
Kathryn Smith, RN, MN Rett Clinic USC University Center of Excellence in Developmental Disabilities Children's Hospital Los Angeles 4650 Sunset Blvd., MS#53 Los Angeles, CA 90027 Contact Kathy Smith: 323-361-8301 For appointments call: 323-361-3849	Dr. Carolyn Schanen Director, Center for Applied Clinical Genomics Nemours Alfred I duPont Hospital for Children 1600 Rockland Road Wilmington, DE 19803 1-302-651-6804 Contact: Kathy Sewell This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
Dr. Raymond Tervo (pediatric services) Dr. Art Beisang (pediatric services) Dr. Robert Wagner (adult services) Rett Syndrome Services Gillette Children’s Specialty Healthcare 200 E. University Ave. St. Paul, MN 55101 Contact: Jason Kelecic 651-312-3176 or 800-709-4040 Resource Nurse La’tosia Erickson 651-229-3897