IRSF Family Conference PDF Print E-mail
The IRSF Family Conference where annually families from across the nation and the globe come together to bond, learn and face the future together. This conference provides continuing educational opportunities and connections to parents, family members, therapists, teachers, physicians and other individuals involved in the day-to-day care of the individual with Rett syndrome.



IRSF 2010 Rett Syndrome ConferenceAnnouncing 26th Annual Conference Location

"Ain’t No Mountain High Enough"
Cheyenne Mountain Resort
Colorado Springs, CO
Memorial Day Weekend
May 28-31, 2010
Mark your calendars – make your plan!

Who: Every person touched by Rett syndrome - parents, caregivers, professionals
Why: Invest in yourself – one of the best things you can do for the child or adult in your life with RTT is to educate yourself about the syndrome and the pathways to treatments and a cure.
What: Knowledgeable, respected Rett experts brought together under one roof, for one weekend, dozens of unique sessions – all for you! Unparalleled sessions on research progress, communication, education, life planning issues, medical care, fundraising how-to workshops, marriage/family strengthening workshops, exhibitors and hands-on demos. And the most priceless gift of all: building community, friendship and learning from each other.

Click here for updated information and to Register!


Conference Financial Planning Tip:

  1. Some company Flexible Spending Accounts (FSAs) will reimburse for registration fees, and possibly travel expenses, for education conferences on a diagnosed medical condition with a doctor’s prescription. Most 2010 Benefits and FSA enrollment periods open soon – see if you can take advantage of this opportunity by calling your company’s benefits administration department today!
  2. Some support agencies understand the life-changing importance of educating parents and caregivers about their child’s diagnosis. Contact your child’s case manager or social worker to ask what expenses could possibly be covered: registration fees, travel, session recordings, or additional respite hours.
  3. Contact local service organizations such as Lion’s Club or Kiwanis International for their sponsorship or support.

Past Conference Handouts and Information
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For information: 1 800 818 RETT (1 800 818 7388)
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