World Rett Syndrome Congress
Charting the Course for Rett Syndrome – World Congress 2012

Just a short month ago, over 500 people from over 20 countries convened in New Orleans to face the future and Chart the Course forward for Rett Syndrome research and care. IRSF was pleased to host this exceptional event with the support of worldwide partners, organizers, sponsors, speakers, and exhibitors. It was quite magical to have such incredible and transformative discussions and debates happening under one roof and at every turn amongst the scientists, researchers, families, and clinicians who care so much about Rett syndrome, MECP2 and CDKL5 disorders. Friendships were made, personal and professional relationships advanced, and the course forward has been fueled thanks to everyone’s concerted efforts.

We hope these materials will allow you to experience or revisit some of the World Rett Syndrome Congress highlights:

WORLD CONGRESS PROGRAMS

Reading the Programs from the four meetings really are the best way to catch the cutting edge topics presented and discussed, especially from the Science and Research portion of the Congress. Many of the Family sessions were also recorded and will be available soon for distribution. PHOTOS


CLICK HERE TO VIEW THE FULL PHOTO GALLERY!


KEYNOTE FAMILY ADDRESS: MICKIE MCCOOL
  • As a special thanks, and motivation to you, please enjoy this complimentary audio link to parent Mickie McCool’s keynote welcome address (18min 30sec). Please share freely, it will be available on demand for about the next 90 days, and Mickie invites you to find her on Facebook
  • Audio link
  • Other webcast and audio sessions from the many family sessions will be available for purchase and on-demand access shortly
ONLINE PHOTO ALBUM
  • We are compiling photos from our volunteer photographers and will be sharing many of them as an online album soon. If you were in New Orleans, please send in your best pictures to This e-mail address is being protected from spam bots, you need JavaScript enabled to view it so we can add them to this album for all to enjoy.
MEDIA ATTENTION

Thank you WWL-TV CBS affiliate and WGNO ABC affiliate for recognizing the significance of this event. Watch replays here: Visit worldcongress.rettsyndrome.org for additional information as event photos, session slides, handouts, and information will be made available in coming weeks.

 

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