I live in Portland, ME with my husband Quin, daughter Addyson and soon we will welcome another little addition to the family. In Portland I am currently president and senior care consultant of Beach Glass Transitions, llc, helping seniors and their families make the transition into senior care.
I have been involved with the Rett Syndrome community for nearly my entire life. My involvement began as Jennifer’s sister assisting in day to day care and being lucky enough to be her roommate. Since then, I have become an advocate for Jennifer and for the entire Rett Syndrome community through development of and participation in fundraisers like the Roll for Rett, and the Rip it for Rett Golf Tournament, as well as countless others that have taken place over the years.
I have been able to channel my experiences living with Rett Syndrome into a passion for advocating on behalf of Jen and girls with Rett everywhere. As an FAB member I hope to help other friends and families do the same. I hope to lend my ear to those who need someone to listen and I hope to provide advice and solace to those who ask for it. I also simply want to dig in and help people be successful in their own efforts to advocate for Rett whether that is through fundraising, organizing or other means.
