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Grandparents Network PDF Print E-mail
Welcome to the Grandparents Network at IRSF. Grandparents are such special people to begin with. However, a grandparent to a Rett Angel is even more special. These children (and your children) love you and need you. Even if you are not closeby in proximity, you can be in spirit by showing your love, care and concern. This network is a primarily email based community that will strive to help you understand Rett syndrome better as well as how you can help your children cope with their diagnosed child. You will receive regular network email communications, the IRSFlash (our monthly e-news alerts) as well as the IRSF Rett Gazette (our bi-annual print newsletter).

Grandparent(s) First Name:
  *
Grandparent(s) Last Name:
  *
Grandparent(s) Mailing Address:
  *
Grandparents City:
  *
Grandparents State or Province:
  *
Grandparents Country:
  *
Grandparents Zip or Postal Code:
  *
Grandparents Home Phone:
  *
Grandparents Cell Phone:
  *
Grandparents Work Phone:
  *
Grandparent(s) Email Address:
  *
Name of Grandchild:
  *
Grandchild's Date of Diagnosis (mm/dd/yyyy):
  *
Grandchild's Date of Birth (mm/dd/yyyy):
  *
Proximity to Grandchild:
  *
Mother's First and Last Name:
  *
Father's First and Last Name:
  *
* Required field


Thank you for registering to be a part of the IRSF Grandparent Network. You will receive an email from Jennifer Endres, Family Resource Manager, shortly.

In order to add to this special section of the website, please email a picture of you (grandmother or grandfather or both) with your grandchild to This e-mail address is being protected from spam bots, you need JavaScript enabled to view it Please identify who is in the picture—first names only will be mentioned. Feel free to include what it is you are referred to as—Grammy, Nana, Papa, Granddad, etc.

The Grandparent Directory will be online soon. You will be contacted when it is complete.

Questions? Call 508-362-2220


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