International Rett Syndrome Foundation (IRSF)

Online Communities

About the RettNet
The RettNet is a moderated email list serve forum for all interested persons who wish to talk openly and honestly with others about the many facets of Rett syndrome. Open discussion may draw a wide variety of opinions and ideas in any subject area. We request that all discussions and comments remain respectful and focused on Rett-related topics. This exchange of ideas is welcome. We do not, however, as an organization, support or endorse any particular treatment, medication or therapy. We encourage parents to support one another with suggestions and to contact their child's physician for final approval.

Support Networks

Join one of IRSF’s Support Networks TODAY. IRSF offers numerous support networks in an effort to provide the specific support tailored to the needs of you and your family need! These networks will provide you with the ability to communicate with others experiencing the same issues you are, allow you to form special relationships with others, and most importantly, will provide you with the much needed information you have been looking for. At this point in time IRSF offers the following networks: The Parents of Males with MECP2 Mutations Network, The Dads Network, The Grandparents Network, The Single Parents Network, The Educators Network and The Life After Rett Network.