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News

November 11, 2014

Neuren Announces Results of the NNZ-2566 Clinical Trial for Rett Syndrome

Today, Neuren Pharmaceuticals announced the results Phase 2 of human clinical trial using NNZ-2566 as a potential treatment for Rett syndrome (a trial supported by Rettsyndrome.org).

November 5, 2014

The NIH Funded Natural History Study

Last week a co-operative agreement was announced to fund research for the Natural History Study, a Research Consortium, to be led by Dr. Alan Percy University of Alabama at Birmingham.

November 3, 2014

Rettsyndrome.org Welcomes New Members to Board of Directors

Rettsyndrome.org proudly welcomes Peter White and Scott Parven to the Board of Directors to support the mission of accelerating research of treatments and a cure for Rett syndrome and related disorders.

Events


Upcoming events

#GivingTuesday
Tue, 02 Dec 2014
All Day Event


You may have seen my story...

But even if not, I think it will sound familiar.

I'm Norah, I am five years old and I have Rett syndrome. My body and hands don’t listen to me and I cannot talk. But I am smart and understand you.

My friends are raising funds to help develop a miracle drug for those like me living with Rett syndrome.

Video created by parents, Megan and Josh Lowe.

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Resources

Rett Syndrome Handbook

Often called the “Rett Syndrome Bible”, all the information you need for your journey

Download the handbook [PDF - 407MB]

Available at the online store

Family Conference

Find valuable resources from our "Opening Doors to Discoveries" Family Conference. Check back for speaker handouts and recordings.

Learn more

Get 1:1 Support

Connect with our Family Empowerment Team

A parent can provide emotional support and information to you and your family

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Find your Regional Rep

Connect with a parent volunteer to learn about the resources in your area.

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Signature fundraisers and events

Strollathon

Strollathons are Rettsyndrome.org's signature fundraising events.

Visit Strollathon.org

Rett Racers

Rett Racers is one of Rettsyndrome.org's signature fundraising programs.

Visit RettRacers.org

Lemonade Stand for Rett

The Lemonade STAND for Rett fundraiser is perfect for anyone new to fundraising.

Start your own Lemonade Stand

Rettsyndrome.org is a 501c(3) non-profit corporation registered as the International Rett Syndrome Foundation

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