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The Rett-002 study is now open for enrollment. All twelve sites have been initiated and are now recruiting. For more information about the trial, study locations and how to register your interest visit www.rettstudy.com.
All clinic sites are now enrolling and conducting study visits. We encourage every family to contact a clinic site directly to enroll. Visit our website for more information about this important study.
Thank you to everyone that had a part in making the LA Feast & Fundraiser Benefiting Rettsyndrome.org such a success! We were blown away by the support, awareness and funds that were raised Saturday night in LA. There is still time to bid on items from the Silent Auction. See the items here.
Rettsyndrome.org would like to send a huge thank you to Dave Clements and Kevin Black for all they have done to promote awareness and bring in donations to support our cause! They recently shared their story on Waking Up in America! Follow their story on Facebook, and click here to purchase your copy of Raising a Hand for Rett!
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What's in your state? Local and national parent-approved resources for Rett families.
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Often called the “Rett Syndrome Bible”, all the information you need for your journey
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Connect with a parent volunteer to learn about the resources in your area.
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Strollathons are Rettsyndrome.org's signature fundraising events.
Rett Racers is one of Rettsyndrome.org's signature fundraising programs.
There are many ways to get involved and host a fundraising event to benefit Rettsyndrome.org.
4600 Devitt Drive Cincinnati, OH 45246
Mail checks to:
P.O. Box 706143, Cincinnati, OH 45270-6143
Rettsyndrome.org is a 501c(3) non-profit corporation registered as the International Rett Syndrome Foundation