We have invested $35 million to find effective treatments and a cure for Rett.
July 1, 2015
A critical paper regarding the X chromosome was published this week in Sciencexpress (June 18, 2015 pages 1-19) that will have a direct bearing on Rett syndrome in the foreseeable future.
February 18, 2015
This week’s news that Neuren Pharmaceuticals has been granted Orphan Drug Status by the FDA for NNZ-2566, now known as Trofinetide, is good news for families who live with Rett Syndrome.
February 11, 2015
We are living in an exciting and hopeful time - “the time of Rett” - where finding a treatment and a cure for Rett is truly possible.
December 17, 2014
An Individualized Education Plan is HUGE! The IEP dictates our life at the school, and will influence your child's life after high school. But . . . you probably already know how HUGE an IEP is.
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Often called the “Rett Syndrome Bible”, all the information you need for your journey
Download the handbook [PDF - 407MB]
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“Reach for Your Star” 2015 Virtual Family Conference is June 22-26
October Orlando Family Getaway - October 2-5, 2015
More conference information
Connect with our Family Empowerment Team, join a special interest network
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Connect with a parent volunteer to learn about the resources in your area.
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Strollathons are Rettsyndrome.org's signature fundraising events.
Rett Racers is one of Rettsyndrome.org's signature fundraising programs.
The Lemonade STAND for Rett fundraiser is perfect for anyone new to fundraising.
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P.O. Box 706143, Cincinnati, OH 45270-6143
Rettsyndrome.org is a 501c(3) non-profit corporation registered as the International Rett Syndrome Foundation