Our Research Approach: An update from our Chief Science Officer

February 5, 2016

In 2015, tremendous progress was made in our efforts to advance Rett syndrome research. This year holds even more promise for Rett syndrome as Rettsyndrome.org continues to fund research programs.

BREAKING: Rettsyndrome.org supports further clinical trials with trofinetide

October 12, 2015

Rettsyndrome.org announces continued financial support for further Rett syndrome clinical trials with trofinetide, a drug developed and manufactured by Neuren Pharmaceuticals.

Rettsyndrome.org's 2014 Impact Report [PDF-2MB]

July 27, 2015

Take a look at our 2014 Impact Report that highlights our accomplishments in research, fundraising and family empowerment.

New Discovery About the X Chromosome

July 1, 2015

A critical paper regarding the X chromosome was published this week in Sciencexpress (June 18, 2015 pages 1-19) that will have a direct bearing on Rett syndrome in the foreseeable future.

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Family resources

Local Resources

What's in your state? Local and national parent-approved resources for Rett families.

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Rett Syndrome Handbook

Often called the “Rett Syndrome Bible”, all the information you need for your journey

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Signature fundraisers and events

Strollathon

Strollathons are Rettsyndrome.org's signature fundraising events.

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Rett Racers

Rett Racers is one of Rettsyndrome.org's signature fundraising programs.

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Lemonade Stand for Rett

The Lemonade STAND for Rett fundraiser is perfect for anyone new to fundraising.

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