We have invested $35 million to find effective treatments and a cure for Rett.
October 12, 2015
Rettsyndrome.org announces continued financial support for further Rett syndrome clinical trials with trofinetide, a drug developed and manufactured by Neuren Pharmaceuticals.
July 27, 2015
Take a look at our 2014 Impact Report that highlights our accomplishments in research, fundraising and family empowerment.
July 1, 2015
A critical paper regarding the X chromosome was published this week in Sciencexpress (June 18, 2015 pages 1-19) that will have a direct bearing on Rett syndrome in the foreseeable future.
February 18, 2015
This week’s news that Neuren Pharmaceuticals has been granted Orphan Drug Status by the FDA for NNZ-2566, now known as Trofinetide, is good news for families who live with Rett Syndrome.
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Rettsyndrome.org is a 501c(3) non-profit corporation registered as the International Rett Syndrome Foundation