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News

November 11, 2014

NNZ- 2566 Clinical Trial: The Families Who Participated

Many of you know Geraldine (aka "Cake") from Virginia and her daughter Amanda. We know her as a strong, capable, intelligent advocate and mother, who always has a smile on her face and a “can-do” attitude. But there is more depth and detail to her life story than most of us know and she is willing to share a glimpse with us.

December 17, 2014

IEPs and School Placement: Exploring Perspectives Empowers the Parent

An IEP is HUGE! The IEP dictates our life at the school, and will influence your child's life after high school. But . . . you probably already know how HUGE an IEP is. So, why should you spend your extremely precious and limited time listening to this presentation? Because it's powerful!

December 15, 2014

Rettsyndrome.org Talks About Advancing Research

Talk about how we choose a research project to fund and what exactly happens behind the scenes to ensure the Research Investments of Rettsyndrome.org are good ones.

November 11, 2014

Neuren Announces Results of the NNZ-2566 Clinical Trial for Rett Syndrome

Today, Neuren Pharmaceuticals announced the results Phase 2 of human clinical trial using NNZ-2566 as a potential treatment for Rett syndrome (a trial supported by Rettsyndrome.org).

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Resources

Rett Syndrome Handbook

Often called the “Rett Syndrome Bible”, all the information you need for your journey

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Family Conference

Find valuable resources from our "Opening Doors to Discoveries" Family Conference. Check back for speaker handouts and recordings.

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Signature fundraisers and events

Strollathon

Strollathons are Rettsyndrome.org's signature fundraising events.

Visit Strollathon.org

Rett Racers

Rett Racers is one of Rettsyndrome.org's signature fundraising programs.

Visit RettRacers.org

Lemonade Stand for Rett

The Lemonade STAND for Rett fundraiser is perfect for anyone new to fundraising.

Start your own Lemonade Stand

Rettsyndrome.org is a 501c(3) non-profit corporation registered as the International Rett Syndrome Foundation

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