We have invested $35 million to find effective treatments and a cure for Rett.
July 27, 2015
Take a look at our 2014 Impact Report that highlights our accomplishments in research, fundraising and family empowerment.
July 1, 2015
A critical paper regarding the X chromosome was published this week in Sciencexpress (June 18, 2015 pages 1-19) that will have a direct bearing on Rett syndrome in the foreseeable future.
February 18, 2015
This week’s news that Neuren Pharmaceuticals has been granted Orphan Drug Status by the FDA for NNZ-2566, now known as Trofinetide, is good news for families who live with Rett Syndrome.
February 11, 2015
We are living in an exciting and hopeful time - “the time of Rett” - where finding a treatment and a cure for Rett is truly possible.
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Often called the “Rett Syndrome Bible”, all the information you need for your journey
Download the handbook [PDF - 407MB]
Purchase a hard copy
“Reach for Your Star” 2015 Virtual Family Conference is June 22-26
October Orlando Family Getaway - October 2-5, 2015
More conference information
Connect with our Family Empowerment Team, join a special interest network
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Connect with a parent volunteer to learn about the resources in your area.
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Strollathons are Rettsyndrome.org's signature fundraising events.
Rett Racers is one of Rettsyndrome.org's signature fundraising programs.
The Lemonade STAND for Rett fundraiser is perfect for anyone new to fundraising.
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P.O. Box 706143, Cincinnati, OH 45270-6143
Rettsyndrome.org is a 501c(3) non-profit corporation registered as the International Rett Syndrome Foundation