Raising Awareness
October Awareness Month
Open National Call for October Rett Syndrome Awareness Month Conference Call

You are invited to attend!

Please join IRSF and families around the country as we unite to learn how to make this October the most incredible Rett Syndrome Awareness Month yet. You will hear motivating stories, learn tips on how to get started and find out how IRSF is able to support you in the activity that best fits you and your family.

It is easy to take part!

Date: Thursday, September 2, 2010
Time: 8:30 pm est
   7:30 pm cst
   6:30 pm mst
   5:30 pm pst
Dial: 1-800-409-5512 and use passcode 51739#

  • No need to RSVP
  • Call will last approximately one hour
  • Dial in five minutes prior to the beginning of the call to ensure a spot on the line

Questions—please contact This e-mail address is being protected from spam bots, you need JavaScript enabled to view it or 508-362-2220

Host: Jennifer Endre, IRSF Family Resource Manager
Speakers:
Barry Rinehart (IRSF Board of Directors and Creator/Producer of “Silent Angels” with Julia Roberts) - “Ten Ideas for Raising Awareness and Critical Funds”
Shawn Mansfield (IRSF Family Advisory Board member and parent to Lauren, RTT)“Lessons Learned from Fundraising”
Jenni Grammer (IRSF Special Events Coordinator)“How IRSF Can Help You with Awareness and Fundraising” 
Lisa Hayden (IRSF Family Support Coordinator) – IRSF materials and awareness items 

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Rett Syndrome State Proclamations

Get Your State Involved

October is Rett Syndrome Awareness Month in the USA, and it is an exciting time for fundraising and gatherings for IRSF families.  Governors in several states honor our effort by signing proclamations declaring October to be Rett Syndrome Awareness Month in their states. These proclamations are available to you and they can be downloaded for your use.

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Community Awareness
Get involved in raising awareness about Rett syndrome in your community!
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How To
What You Can Do To Help

We need your help!!

Please take the time to make an appointment with your Congressman or Senator, or send a letter today!!
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Letter Writing Tips
When writing a letter to your U. S. Representative or Senators, keep in mind the following rules of thumb: 
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