Fundraising Resources

If we are going to bring HOPE and HELP to families living with Rett syndrome and discover treatments and a cure
...we need your help.


	“Never doubt that a small group of thoughtful committed citizens can change the world: Indeed it’s the only thing that ever has.” ~ Margaret Mead

The pace towards treatment and a cure for Rett syndrome has accelerated. Prominent researchers in labs around the world are working to unravel the mysteries of this devastating disorder and the excitement is tangible.

Rett Syndrome has a way of making us feel helpless. But we don't have to be. You can make a difference. Help IRSF raise the money to continue to fund first rate science that will impact the lives of everyone touched by Rett syndrome.

We provide you with simple ways to get involved. Whether your ideas are big or small, we welcome you to take part in our fundraising efforts. We will help you along the way and provide you with the assistance you need.

Please contact Jenni Grammer at This e-mail address is being protected from spam bots, you need JavaScript enabled to view it or Jennifer Endres at This e-mail address is being protected from spam bots, you need JavaScript enabled to view it to get started today.

Here are some materials that IRSF can provide you with for each type of event. Feel free to download and print off to use for your fundraiser! Each of our signature events are easy to plan and are supported 100% by the IRSF staff.

Strollathons
(all Strollathon materials can be tweaked for Runs/Walks/Races for Rett)

The Strollathon is the signature event of the International Rett Syndrome Foundation. It is a fun-filled family event which raises crucial research dollars and public awareness of Rett syndrome (RTT) in communities across the country and even worldwide. The hard work and dedication of families country-wide has helped IRSF to substantially increase the dollars raised and add more Strollathons to the calendar each year to help further our mission. In 2004, we helped Rett families host four Strollathons and in 2005 that number doubled to eight! In just two years, from 2004-2006, the Strollathon program went from raising $465,000 to $815,000! A record 17 Strollathons took place in 2007 and raised an astounding $1.2 million! Despite the hard economic times in 2008 families and friends from coast to coast raised nearly $1 million and hosted 14 Strollathons. The program has grown tremendously since the Inaugural event in 2002 and has raised nearly $4.5 million for RTT research, family support and advocacy.

If you are interested in hosting or helping with a Strollathon/Run/Walk contact us or see below for the HOW TO manual and informational pieces on planning and hosting a Stroll – IRSF takes care of mailings, accounting, supplies and many other things that make a Strollathon successful! All we need is your voice and commitment – your help is our hope!

*In 2010, 15 Strollathons are planned throughout the country! Click here to find a Strollathon near you to participate in!

Golf, Galas and Fundraisers to lend IRSF a Hand...

Whatever the event, IRSF has the tools you will need to host a successful fundraiser!

Below are some resources you're going need and use to plan your Event! We promise it will be the most rewarding and fulfilling experience on your Rett syndrome journey. GALA HOW TO MANUAL COMING SOON!

Printable Fundraising Resources and Sample Letters

Resources for Strollathons/Walks/Runs/Golf Events

The 2010 Strollathon Team Captain Tool Kit -

2010 Captain Kit 1.59 Mb

The IRSF HOW TO Strollathon Manual - IRSF Strollathon HOW TO Manual
The IRSF HOW TO Golf Tournament Manual - IRSF Golf How-To Manual
Strollathon Terminology and Other Important "Stroll" Tidbits - Important Information for Strollathons
Fundraising Ideas from A to Z - Big to Small! - Fundraising Ideas from A to Z
Need some help getting started? Here are Some Tips to Raise Funds FAST! - Tip to Raise Funds QUICKLY
Strollathon Sponsors - We Call them Partners - Here is a Sample of the Partnership Opportunities Pamphlet that you will send to potential Partners - IRSF Strollathon Partnership Opportunities
Team Captains - Each Strollathon Team should have a Captain- Here are some Guidelines for Captains to follow to ensure their team is successful - IRSF Strollathon Captain Guidelines
Captain List - Who can I ask to become Team Captains? - Captain List
How will I stay on track? - IRSF has put together a Time-Line for the Strollathon Chair! (This can also be used to plan other events, contact Jenni Grammer to have it tweaked just for you.) You will fill out the top and then the IRSF Special Events Manager will walk you through the rest to help set deadlines and keep you on track so you receive all your supplies on time - Strollathon Timeline Template
Strollathon Recipe for Success - Helpful Tips to Ensure a Successful Strollathon Each Year - Strollathon Recipe for Success
Sponsorships - Sponsorships for the Small Business in Your Area - Sponsorships

Resources for Any Type of Fundraising Event

What Else Can IRSF Do to Support My Event? That's easy! We can help you with every aspect of planning and hosting! REMEMBER: We are by your side every step of the way! -

How IRSF Supports Events

Supplies, Merchandise and Information Galore! Here is a list of the things you can sell, hand out and just have on hand the day of your fundraiser -

Items at IRSF Events

Sample Letters - Below you will find a few samples of letters that families have used to ask for support for their various fundraisers! Feel free to pull from each of these letters and put your own personal twist on them - we encourage you to include a picture of your Rett angel so that your donors/supporters can see YOUR reason for getting involved.