November

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Rare Disease Challenge: Be HEARD

Dear Rett syndrome researcher community:

We are eager to share an announcement about an upcoming competition "Rare Disease Science Challenge: Be HEARD (Helping Empower and Accelerate Research Discoveries)" hosted by Assay Depot and Rare Genomics Institute. Together, they have partnered with 19 life science companies to bring support to rare disease research by donating cutting edge technology, services and resources, as well as a $10,000 cash prize to the winning research proposal.

Be HEARD is encouraging non-profits, academic researchers, rare disease advocacy groups, families of rare disease patients and for-profit companies to collaborate to advance rare disease research. IRSF would like to encourage the research community to check whether your Rett syndrome research can benefit from the donated services and cash prize.

For more information about the challenge, please visit: challenge.assaydepot.com

Research proposal deadline: December 15, 2012

IRSF is the world's leading private funder of basic, translational and clinical Rett syndrome research, funding over $28M in high-quality, peer-reviewed research grants and programs to date. Annually, IRSF hosts the world's largest gathering of global Rett researchers and clinicians to establish research direction and priorities while exchanging ideas and the most recent information. IRSF is the most comprehensive non-profit organization dedicated to providing thorough and accurate information about Rett syndrome, offering informational and emotional family support and stimulating research aimed at accelerating treatments and a cure for Rett syndrome and related disorders. IRSF has earned Charity Navigator's most prestigious 4-star rating. To learn more about IRSF and Rett syndrome, visit www.rettsyndrome.org or call IRSF at 1-800-818-7388 (RETT).

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