August

22

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Rett Community Researchers:

We would like to point out new information on the webpage of the National Institute of Neurological Disorders and Stroke (NINDS). Dr. Shai D. Silberberg , Program Director at the NINDS, announced there is a new section ‘A spotlight on rigorous study design and transparent reporting’ in the top right corner of the webpage with new links to the NINDS Notice and Guidelines on “Improving the Quality of NINDS-Supported Preclinical and Clinical Research through Rigorous Study Design and Transparent Reporting” and a link to the Workshop Summary and Agenda on “Optimizing the Predictive Value of Preclinical Research” .

A note from the families who attended Family Conference at the 7th World Rett Syndrome Congress
to all Rett syndrome researchers.



IRSF is the world's leading private funder of basic, translational and clinical Rett syndrome research, funding over $28M in high-quality, peer-reviewed research grants and programs to date. Annually, IRSF hosts the world's largest gathering of global Rett researchers and clinicians to establish research direction and priorities while exchanging ideas and the most recent information. IRSF is the most comprehensive non-profit organization dedicated to providing thorough and accurate information about Rett syndrome, offering informational and emotional family support and stimulating research aimed at accelerating treatments and a cure for Rett syndrome and related disorders. IRSF has earned Charity Navigator's most prestigious 4-star rating. To learn more about IRSF and Rett syndrome, visit www.rettsyndrome.org or call IRSF at 1-800-818-7388 (RETT).

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