Rett Community Researchers:

We would like to point out two announcements from last week’s NIH guide. The National Institute of Neurological Disorders and Stroke (NINDS) released two RFAs on cooperative agreements. The first relates to Specialized Neuroscience Research Programs (SNRPs). The intent of the SNRP is to promote opportunities to improve the research infrastructure at academic institutions with emerging NINDS mission related research programs to engage researchers in novel, cutting edge research. The second relates to research projects for the Epi4K Genetics and Genomics of Human Epilepsies Center without Walls (Epi4K CWOW). Epi4K is composed of a multidisciplinary team of investigators working together to discover genetic factors that contribute to Mendelian and complex epilepsies.

Jul 13 NIH Guide

Specialized Neuroscience Research Program (SNRP) (U54) (RFA-NS-13-004) National Institute of Neurological Disorders and Stroke Application Receipt Date(s): November 27, 2012

New Projects for Epi4K Genetics and Genomics of Human Epilepsies Center without Walls (U01) (RFA-NS-13-005) National Institute of Neurological Disorders and Stroke Application Receipt Date(s): December 18, 2012

Conference on Clinical Research for Rare Diseases (CCRRD)

The Rare Diseases Clinical Research Network (RDCRN) and the Clinical and Translational Science Awards (CTSA) are sponsoring the 3rd Conference on Clinical Research for Rare Diseases (CCRRD) on Tuesday October 2, 2012 in Rockville, Maryland. This unique conference will focus on research methodology for rare diseases and should be of particular interest to trainees and junior faculty engaged in research in rare diseases. For more information about the conference, including details about the program, applying for travel awards, and conference logistics and registration, visit the conference website: rarediseasesnetwork.epi.usf.edu/conference.

REMINDER: LOI Deadline for IRSF’s Grant Program is less than 2 weeks away!

A note from the families who attended Family Conference at the
7th World Rett Syndrome Congress to all Rett syndrome researchers.