March

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A new endeavor to identify NIH opportunities
for Rett syndrome research

Dear Rett syndrome research community,

Starting today, IRSF will be initiating a new endeavor to help with NIH activities. We will be reviewing the NIH Guide on a weekly basis and scanning for announcements that are pertinent to the Rett (RTT) syndrome research community. Our objective is to highlight NIH opportunities that might aid you in your RTT research efforts.

We will only send one email a week addressing the NIH activities. We will not send emails if no announcements are directly pertinent to RTT research.

If you want to be taken off this list, please respond to this email with the word “unsubscribe” in the subject line, and we are happy to do so. If you want to pass this to others interested in RTT, please feel free to forward this email, and we will be happy to add them to our listserv.



Small Business Initiative

We at IRSF are very interested in helping to build a robust Small Business Innovation Research (SBIR) and Small Business Technology Transfer (STTR) grants portfolio at the NIH geared toward RTT research. To this end we have consolidated the 2012 calendar year announcements to date in regard these important grants. Our goal is to help you understand the mechanism and who to partner with as you build your translational grant portfolios.

Feb 3 NIH Guide

PHS 2012-02 Omnibus Solicitation of the NIH, CDC, FDA and ACF for Small Business Innovation Research Grant Applications (Parent SBIR [R43/R44])
    (PA-12-088)
  • National Institutes of Health
  • Administration for Children and Families
  • Center for Global Health
  • Food and Drug Administration
  • National Center for Complementary and Alternative Medicine
  • National Center for Chronic Disease Prevention and Health Promotion
  • National Center for HIV, Viral Hepatitis, STDs and Tuberculosis Prevention
  • National Cancer Institute
  • National Center for Injury Prevention and Control
  • National Center for Immunization and Respiratory Diseases
  • National Eye Institute
  • National Institute on Aging
  • National Institute on Alcohol Abuse and Alcoholism
  • National Institute of Allergy and Infectious Diseases
  • National Institute of Arthritis and Musculoskeletal and Skin Diseases
  • National Institute of Biomedical Imaging and Bioengineering
  • Eunice Kennedy Shriver National Institute of Child Health and Human Development
  • National Institute on Drug Abuse
  • National Institute on Deafness and Other Communication Disorders
  • National Institute of Dental and Craniofacial Research
  • National Institute of Diabetes and Digestive and Kidney Diseases
  • National Institute of Environmental Health Sciences
  • National Institute of General Medical Sciences
  • National Institute of Mental Health
  • National Institute of Neurological Disorders and Stroke
  • National Institute of Nursing Research
  • National Institute for Occupational Safety and Health
  • National Library of Medicine
  • Application Receipt Date(s): Multiple dates, see announcement.

PHS 2012-02 Omnibus Solicitation of the NIH for Small Business Technology Transfer Grant Applications (Parent STTR [R41/R42])
    (PA-12-089)
  • National Institutes of Health
  • National Center for Complementary and Alternative Medicine
  • National Cancer Institute
  • National Eye Institute
  • National Heart, Lung, and Blood Institute
  • National Institute on Aging
  • National Institute on Alcohol Abuse and Alcoholism
  • National Institute of Allergy and Infectious Diseases
  • National Institute of Arthritis and Musculoskeletal and Skin Diseases
  • National Institute of Biomedical Imaging and Bioengineering
  • Eunice Kennedy Shriver National Institute of Child Health and Human Development
  • National Institute on Drug Abuse
  • National Institute on Deafness and Other Communication Disorders
  • National Institute of Dental and Craniofacial Research
  • National Institute of Diabetes and Digestive and Kidney Diseases
  • National Institute of Environmental Health Sciences
  • National Institute of General Medical Sciences
  • National Institute of Mental Health
  • National Institute on Minority Health and Health Disparities
  • National Institute of Neurological Disorders and Stroke
  • National Institute of Nursing Research
  • National Library of Medicine
  • Application Receipt Date(s): Multiple dates, see announcement.


Jan 13 NIH Guide

NINDS Exploratory Clinical Trials for Small Business (STTR [R42])
    (PAR-12-072)
  • National Institute of Neurological Disorders and Stroke
  • Application Receipt Date(s): Multiple dates, see announcement.

NINDS Exploratory Clinical Trials for Small Business (SBIR [R44])
    (PAR-12-073)
  • National Institute of Neurological Disorders and Stroke
  • Application Receipt Date(s): Multiple dates, see announcement.

NINDS Competing Renewal Awards of STTR Phase II Grants (Phase IIB) for Exploratory Clinical Trials (STTR [R42])
    (PAR-12-074)
  • National Institute of Neurological Disorders and Stroke
  • Application Receipt Date(s): August 5, 2012 and August 5, 2013 AIDS: September 7, 2012 and September 7, 2013

NINDS Competing Renewal Awards of SBIR Phase II Grants (Phase IIB) for Exploratory Clinical Trials (SBIR [R44])
    (PAR-12-075)
  • National Institute of Neurological Disorders and Stroke
  • Application Receipt Date(s): August 5, 2012 and August 5, 2013 AIDS: September 7, 2012 and September 7, 2013

NINDS Competing Renewal Awards of STTR Phase II (Phase IIB) Grants (STTR [R42])
    (PAR-12-076)
  • National Institute of Neurological Disorders and Stroke
  • Application Receipt Date(s): August 5, 2012 and August 5, 2013; AIDS Date: September 7, 2012 and September 7, 2013

NINDS Competing Renewal Awards of SBIR Phase II (Phase IIB) Grants (SBIR [R44])
    (PAR-12-077)
  • National Institute of Neurological Disorders and Stroke
  • Application Receipt Date(s): August 5, 2012 and August 5, 2013 AIDS Date: September 7, 2012 and September 7, 2013




NIH Blueprint for Neuroscience Research Grand Challenge


Feb 24 NIH Guide

Discovering Novel Drugs for Disorders of the Nervous System (U01)

The National Institutes of Health (NIH) announces a unique opportunity for investigators working with small molecule compounds to gain access to a robust ‘virtual pharma’ network to discover neurotherapeutic drugs. Successful applicants to this FOA will become collaborative participants in this network, receiving both funding and no-cost access to contracted drug discovery services that are not typically available to the academic research community.

Letter of Intent Due Date: May 8, 2012
Application Due Date: June 8, 2012





AHRQ Primary Announcement


Feb 24 NIH Guide

Infrastructure Development Program in Patient-Centered Outcomes Research (PCOR) (R24)
    (PA-12-114)
  • Agency for Healthcare Research and Quality
  • Application Receipt Date(s): June 19, 2012, December 19, 2012, December 19, 2013, December 19, 2014




World Rett Syndrome Congress

Visit the website now to view meeting information essential for making your travel plans.

Registration opened February 21st!
We look forward to seeing you in New Orleans!

IRSF would appreciate your help in spreading the word about the World Rett Syndrome Congress. To reach a greater audience who may be interested in Rett syndrome research, we request that you put the World Congress on your institution's public calendars/websites/fliers.

If you would like more information, please email Janice Ascano at jascano@rettsyndrome.org






Announcement: INAUGURAL CDKL5 WORKSHOP

JUNE 27th, 2012
Intercontinental Hotel, NEW ORLEANS


Directly after the World Rett Syndrome Congress in New Orleans there will be an inaugural workshop held to discuss the CDKL5 disorder associated with atypical Rett Syndrome. Sponsored by The International Foundation for CDKL5 Research, the intention of this workshop is to provide updated clinical and scientific information on CDKL5 and to bring together scientists and clinicians to discuss future research for this disorder. This will be a one day workshop from 8 AM to 3 PM with the afternoon dedicated to small group sessions focusing separately on future studies and ideas to enhance both the clinical and scientific knowledge of the CDKL5 disorder. We are planning a very interactive day that will aspire future collaborations from the around the world. Please join us on June 27th to help lead the charge to finding future answers and therapies for the CDKL5 disorder.





Reminder: The Letter of Intent deadline for the first cycle of the IRSF Translational Grant Program is TODAY.

IRSF is the world's leading private funder of basic, translational and clinical Rett syndrome research, funding over $26M in high-quality, peer-reviewed research grants and programs to date. Annually, IRSF hosts the world's largest gathering of global Rett researchers and clinicians to establish research direction and priorities while exchanging ideas and the most recent information. IRSF is the most comprehensive non-profit organization dedicated to providing thorough and accurate information about Rett syndrome, offering informational and emotional family support and stimulating research aimed at accelerating treatments and a cure for Rett syndrome and related disorders. IRSF has earned Charity Navigator's most prestigious 4-star rating. To learn more about IRSF and Rett syndrome, visit www.rettsyndrome.org or call IRSF at 1-800-818-7388 (RETT).

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