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Action

NOW

October 1, 2011


Dear Friend,

October is National Rett Syndrome Awareness Month. Every 2 hours a girl is born with Rett syndrome, and you know one. Rett syndrome has an immeasurable impact on our children, our families and our community. It is the leading cause of severe impairment in girls yet the general public still doesn’t know about it. Let’s change this. We need the world to embrace our children and help us turn Research to Reality for the thousands diagnosed with Rett syndrome. IRSF offers our support to help you spread the word about Rett syndrome.

This month is dedicated to raising awareness and it will only happen with ACTION!

That’s why we are asking you to take action in a few key ways:

  1. Give a gift to The International Rett Syndrome Foundation to support our fight for a cure.
  2. Get Involved with our NEW Public Service Campaign!
  3. Wear Purple Rett syndrome gear throughout October (and beyond). Use coupon code ORSAM11 to get a 10% discount on your Rett syndrome awareness items.
  4. Take part in an IRSF fundraiser or start your own.
  5. Spread awareness in the schools. Ask your child’s educators to join the Educators Network.
  6. Join the worldwide Blue Sky Girls Event(s) on October 15th.
  7. Take part in the IRSF research webinar on October 18th where Dr. Omar Khwaja of Boston Children’s Hospital will share an “Inside Look at the IGF-1 Clinical Trial” – details to follow.
  8. Use social media to spread awareness – Share the daily RTT Facts and Calls to Action posted daily throughout October on the IRSF Facebook wall.

When you do one of these quick and easy action items, you will be taking a stand in the fight for a cure for Rett syndrome. You will be saying, “It’s time for ACTION.”

There is one last step you can take – recruit friends, family, co-workers and more to join you in the fight for a cure. Forward this email. Together we hope, discover and achieve.

Thank you,

Stephen Bajardi
Executive Director
International Rett Syndrome Foundation

IRSF is the world's leading private funder of basic, translational and clinical Rett syndrome research, funding over $24M in high-quality, peer-reviewed research grants and programs to date. Annually, IRSF hosts the world's largest gathering of global Rett researchers and clinicians to establish research direction and priorities while exchanging ideas and the most recent information. IRSF is the most comprehensive non-profit organization dedicated to providing thorough and accurate information about Rett syndrome, offering informational and emtional family support and stimulating research aimed at accelerating treatments and a cure for Rett syndrome and related disorders.IRSF has earned Charity Navigator's most prestigious 4-star rating. To learn more about IRSF and Rett syndrome, visit www.rettsyndrome.org or call IRSF at 1-800-818-7388 (RETT).

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