October

16

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Dear Rett syndrome community,

This October, Black Out Rett Syndrome Month, we are asking supporters like you to turn your awareness into action for our girls with Rett syndrome.

Help fight for angels like Cameron "Cammy" Babiarz. Cammy, who is just 3 years old, was diagnosed with Rett syndrome in January, 2011. Cameron's parents, Jackie and Billy Babiarz of Wheaton, IL, have made it their goal to raise awareness and funds for Rett syndrome. The pair have hosted several successful fundraisers and Jackie has participated in multiple runs on behalf of Cammy and Rett syndrome.
"After every run, I kiss Cammy and whisper to her 'You keep moving your legs and I'll keep moving mine.' She smiles and stares into my eyes saying 'DEAL!.' Then I tell her 'Rett is messing with the wrong kid' and she giggles."
~ Jackie Babiarz

It's YOUR time to join Jackie in the fight for Cammy and all of our girls with Rett syndrome – Take action TODAY to Black Out Rett Syndrome in October!
  1. Donate to the Black Out Rett in October Campaign and potentially have your gift matched up to $300K!

  2. Change your profile picture to the Black Out Logo.

  3. Share the IRSF Facebook posts every day in October.

  4. Get a proclamation announcing October as Rett Syndrome Awareness Month in your state!

  5. Send an email to all friends and family asking them to support our fight.
The reality of treatments and an eventual cure for Rett syndrome is closer than ever before with two clinical trials in progress and more funds propelling the research forward at an unprecedented pace. There is HOPE.

Be a part of the Cure – Take Action for girls like Cammy TODAY!
IRSF is the world's leading private funder of basic, translational and clinical Rett syndrome research, funding over $28M in high-quality, peer-reviewed research grants and programs to date. Annually, IRSF hosts the world's largest gathering of global Rett researchers and clinicians to establish research direction and priorities while exchanging ideas and the most recent information. IRSF is the most comprehensive non-profit organization dedicated to providing thorough and accurate information about Rett syndrome, offering informational and emotional family support and stimulating research aimed at accelerating treatments and a cure for Rett syndrome and related disorders. IRSF has earned Charity Navigator's most prestigious 4-star rating. To learn more about IRSF and Rett syndrome, visit www.rettsyndrome.org or call IRSF at 1-800-818-7388 (RETT).

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