September 8, 2009
October Awareness Month: Ideas and Tips Conference Call
October is officially Rett Syndrome Awareness month.
Rett syndrome has an immeasurable impact on your child, your family, and your community.
It is the leading cause of severe impairment in girls yet the general public still doesn’t know about it.
We need people to know about Rett syndrome. We need the world to embrace our children and help us reach for a cure.
If we work together, we can make this happen.
Let IRSF share ideas of ways you can help. Dial in at no charge on Wednesday, September 9th to be inspired with a range of suggestions from the simple and inexpensive to the more high-profile and strategic – every activity small and large makes a difference!
Who: Everyone interested in making a difference
Date: Wednesday, September 9
Time: 4pm Eastern / 3pm Central / 2pm Mountain / 1pm Pacific / Noon Alaska / 10am Hawaii
Host: Paige Nues, IRSF Director Family Support
Speakers:
Barry Rinehart (IRSF Board of Directors and Creator/Producer of “Silent Angels” with Julia Roberts) - “Ten Ideas for Raising Awareness and Critical Funds”
Shawn Mansfield (IRSF Family Advisory Board member and parent to Lauren, RTT) – “Ten Lessons Learned from Fundraising”
Jenni Grammer (IRSF Special Events Coordinator) – “Ten Ways IRSF Can Help You with Awareness and Fundraising”
Length: 1 hour - each speaker will present for 10 minutes, with time for questions/answers at the end
Dial at no charge five (5) minutes before the specified time:
US and Canada 1-800-409-5512 / Passcode 51739#
Outside US and Canada dial 1-503-767-1200 / Passcode 51739#
Have paper and pencil on hand to take notes.
Forward this on to other interested families and friends!
[SUBSCRIPTIONS]
October Awareness Month: Ideas and Tips Conference Call
October is officially Rett Syndrome Awareness month.Rett syndrome has an immeasurable impact on your child, your family, and your community.
It is the leading cause of severe impairment in girls yet the general public still doesn’t know about it.
We need people to know about Rett syndrome. We need the world to embrace our children and help us reach for a cure.
If we work together, we can make this happen.
Let IRSF share ideas of ways you can help. Dial in at no charge on Wednesday, September 9th to be inspired with a range of suggestions from the simple and inexpensive to the more high-profile and strategic – every activity small and large makes a difference!
Who: Everyone interested in making a difference
Date: Wednesday, September 9
Time: 4pm Eastern / 3pm Central / 2pm Mountain / 1pm Pacific / Noon Alaska / 10am Hawaii
Host: Paige Nues, IRSF Director Family Support
Speakers:
Barry Rinehart (IRSF Board of Directors and Creator/Producer of “Silent Angels” with Julia Roberts) - “Ten Ideas for Raising Awareness and Critical Funds”
Shawn Mansfield (IRSF Family Advisory Board member and parent to Lauren, RTT) – “Ten Lessons Learned from Fundraising”
Jenni Grammer (IRSF Special Events Coordinator) – “Ten Ways IRSF Can Help You with Awareness and Fundraising”
Length: 1 hour - each speaker will present for 10 minutes, with time for questions/answers at the end
Dial at no charge five (5) minutes before the specified time:
US and Canada 1-800-409-5512 / Passcode 51739#
Outside US and Canada dial 1-503-767-1200 / Passcode 51739#
Have paper and pencil on hand to take notes.
Forward this on to other interested families and friends!
[SUBSCRIPTIONS]