May 27, 2010


Still Time to Register for IRSF Webcast


It is not too late for you or your child’s physicians, therapists, educators, or case managers to register for the first-ever live streamed webcast from the annual IRSF Education and Awareness Conference. It is easy to register, and if you can’t watch the sessions live this Saturday, the package includes 90-days of continuous on-demand access to all 14 sessions! That’s quite a deal to learn from the experts at a cost working out to less than $10 USD per session.


Your Webcast Package includes:

  • Real-time access to 14 live sessions Saturday, May 29, 2010 (program listed below, and on the website)

  • 90 days of continuous on-demand access to these 14 sessions after the conference (through Aug. 29, 2010)

  • Conference Program, Helping Hands Keepsake Journal, speaker handouts and slides (pdfs to be posted to www.rettsyndrome.org within 30 days after conference)


How Does this Work?

  • System requirements for the live webcast or post-conference on-demand sessions: high-speed internet connected computer, with connected audio speakers (**dial-up will not deliver a quality viewing experience**)

  • Enter the url (web address) noted above into your browser, where you will be prompted for the userid and password included above

  • Your online webcast will automatically begin at 7:45am MOUNTAIN time, and will continue throughout the day, ending approx 5:45pm MOUNTAIN time

  • You may logon and logoff throughout the day. This will not affect your ability to access any of the 90-day on-demand sessions after conference

  • Bookmark the Webcast url – After conference, the sessions will be setup as “chapters” that you can watch on-demand, in any sequence, as often as you would like for 90-days (through Aug. 29, 2010)


SESSION SCHEDULE

8am

Rett Syndrome 101 - Alan Percy, MD, Director UAB Rett Center at the University of Alabama Birmingham Civitan International Research Center

8:30am

Genetics 101 - Steve Skinner, MD, Director Clinical Genetics Services, Greenwood Genetic Center

9am

Keynote: The Power of the Powerless - Susan Zimmermann, author Keeping Katherine

(9:30am - BREAK)

9:45am

What’s Going Right in the Brain - Aleksandra Djukic, MD, PhD, Director, Rett Syndrome Center, Albert Einstein College of Medicine at Montefiore

10:10am

Apraxia and Communication - Linda Burkhart, Simplified Technology

10:55am

Enhancing Communication: Regulating Sensory Input and Supporting Ease of Access - Judy Lariviere, M.Ed., OTR/L, Communication Specialist, Rett Clinic, Oakland Children’s Hospital

11:40am

An Integrated Model of Communication and Literacy Instruction for Students with Rett Syndrome - Pati King-deBaun, MS CCC-SLP, Creative Communicating

(12:15pm - LUNCH BREAK)

1:15pm

Well Child and Adult Care Overview - Jane Lane, RN, University of Alabama Birmingham Rett Center and IRSF

1:40pm

Neurology for Rett Syndrome - Daniel G. Glaze, MD, Baylor College of Medicine; Medical Director, The Blue Bird Circle Rett Center, Texas Children's Hospital; Chief, Texas Children's Hospital Sleep Clinic

2:15pm

Gastroenterology for Rett Syndrome - Kathleen Motil, MD, PhD Pediatrician and Gastroenterologist, Blue Bird Rett Center BCM, TCH

2:45pm

Orthopedics and Scoliosis - John Killian, MD, Orthopedics for Kids

3:15pm

Rehabilitation Therapeutic Interventions in Rett Syndrome - Aloysia Schwabe, MD, Physical Medicine and Rehabilitation, Blue Bird Rett Center, BCM, TCH

(3:45pm - BREAK)

4pm

Research and Clinical Trials - Tony Horton, PhD, IRSF CSO and Jeffrey Neul, MD, PhD, Baylor College of Medicine

5pm

Direction of IRSF: Supporting Families, Raising Awareness and the Research to Reality Campaign - Kathryn Kissam, Chairman, IRSF Board of Directors and Steve Bajardi, Executive Director, IRSF


Thank you for registering for the first-ever live streamed broadcast from the annual IRSF Education and Awareness Conference. We know you will leave better prepared and better equipped to offer our children living with Rett syndrome an enriched world of improved health, access to communication, and an understanding of the bright research horizon.

If you have any questions, please email us at admin@rettsyndrome.org.

Sincerely,
Paige Nues
Conference Director

Please note: audio recordings (MP3s) of the Sunday sessions are not included in your webcast package, but will be available for purchase from www.rettsyndrome.org/store within 30 days after conference for a nominal per-session or package fee.