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This is a full list of the IRSF document library.

 

Excel Documents
IRSF Financial Reporting Template


Conference 2009
Sleep Disorders - Barrish
Making a Difference One Song at a Time
Celebrating the Torch Within Conference Program
Tribute Reception Program
Helping Hands Keepsake Ad Journal
Well Child and Adult Care Overview
The Maturing Woman with Rett Syndrome: From Puberty to Menopause
Let’s Get Together and Communicate!
Cognitive assessment and intervention
Understanding the Signs and Symptoms of Rett Syndrome in Your Child
Epilepsy and Seizure Management
Rett Syndrome 101
Rett Syndrome After 25 Years Handout
World Congress Update on Therapies: Those Mice are Working Hard for you!
Behaviors in Rett Syndrome – Handout
Carolyn’s Genetics Cookbook
Physical Therapy
PT Handout
To Sleep, Perchance to Dream: Sleep Disorders in Rett Syndrome
Rett Genetics 101
Reasons for Genetic Testing
Growing Straight and Tall with Rett: Bone and Muscle Orthopaedic Issues
NIH RDCRN Natural History Study
IRSF 2009 Conference Audio Recording Form
Family & Friends, How Miracles Are Created - Families and Researchers
Gastroenterology
Rett Syndrome Classification and DSM-V
Carrying the Fundraising Torch: A “How-To” Workshop
Endocrinology: Bone Issues and their Treatment in Rett Syndrome


PDF Documents
Should I Participat in the Rett Natural History Study?
2013 Site Visit Schedule
Recent Research Progress Fact Sheet Fal 2012
Wyoming State Proclamation
Wisconsin State Proclamation
Missouri State Proclamation
IRSF 2011 Audit
Setting Standards - DMM
Setting Standards - DMM
Setting Standards - DMM
Katz - The Journal of Neuroscience
Ballas - The Journal of Neuroscience
Ballas - The Journal of Neuroscience
IRSF2011 990 Form
NHS DNA Bank - Neul 2012
OH State Proclamation
The Natural History Study in Oakland, CA and Building the DNA Repository for Rett syndrome
Virtual Toast Response Form 2012
Pennsylvania State Proclamation 2012
Nevada State Proclamation 2012
Idaho State Proclamation 2012
Michigan State Proclamation 2012
Oklahoma State Proclamation 2012
Massachusetts State Proclamation 2012
Arizona State Proclamation 2012
Black Out Rett Syndrome Sponsorship 2012
Black Out Rett Syndrome Flyer 2012
Lousiana State Proclamation 2012
Louisiana State Proclamation 2012
Charity Golf Tournament
Washington State Proclamation 2012
Texas State Proclamation 2012
A DNA Repository for Rett Syndrome (updated 9/2012)
FAB 2013 Application
Oregon State Proclamation 2012
Illinois State Proclamation 2012
Black Out Rett Syndrome Sponsorship
Black Out Rett Syndrome Flyer
Black Out Rett Syndrome Auction Donation Form
Rett Growth Cover Letter, September 2012
Gillette Children’s Specialty Healthcare
Awareness Ideas for October Awareness Month
Angel Awareness Card Sample - Back
Angel Awareness Card Sample - Front
Clint Black PSA Flier 2012
Fact Sheet 2012
Rett Brochure
Awareness Flier 2012
Card 2RV
Fundraising Flier 2012
Alyssa's All About Me Book
World Congress Family Education & Awareness Program
World Congress Keepsake Journal
World Congress Translational Symposium
World Congress Basic Research Symposium
World Congress Clinician Medical Education Program
World Congress Family Education and Awareness Program
2 - 20 Years FOC (head circumference)
0 - 36 Months FOC (head circumference)
2 - 20 Years BMI
0 - 36 Months BMI
2 - 20 Years Height
0 - 36 Months Height
2 - 20 Years Weight
0 - 36 Months Weight
9th Annual Spike Rett Syndrome
Spike Rett 2012
Find Serenity Yoga Class
World Congress Agenda: Translationa & PreClinica Research
World Congress Agenda: Translationa & PreClinica Research
Exhibitor Hotel Setup Information
World Congress Family Education and Awareness Program
Gene Machine Flier
iPad Workshop Handout for Attendees
World Congress Agenda - Translational & PreClinical Research
World Congress Agenda - Basic Research Symposium
World Rett Congress Clinician Seminar Flier
World Congress Family Education and Awareness Program Summary
Find Serenity Yoga Class Flyer
Rett Syndrome Pre IND Announcement
Cohen Baseball Fundraiser Flyer - 2012
Love is Two People Talking - Press Release
Love is Two People Talking - Full Text
Potty Training
Eye-Tracking Technology shows Social Preferences in Rett Syndrome
A DNA Repository for Rett Syndrome
Poker Run 2012
Bone Marrow Transplant Flash SGL
Letter from Dr. Scott Pomeroy
Charamella Golf Outing Tri-Fold Brochure
Live Rett Free Registration
World Congress Baton Rouge 2012 Press Release
Sponsor Packet
Profiling-Scoliosis-in-Rett-Syndrome-2010-Ped-Res.pdf
Motil.pdf
Motil-JPGNVitamin-D-deficiency.pdf
JCN-North-American-Database.pdf
JB-Lane-QOL-paper-Neurology.pdf
J-Peds-2009-Kirby-et-al-Rett-longevity.pdf
Glaze-seizure-paper-Neurology-2010.pdf
Ann-Neurol-2010-Updated-Criteria.pdf
Ann-Neurol-2010-Lessons-on-Criteria.pdf
World Congress Letter of Invitation
About the World Rett Syndrome Congress 2012
Exhibitor Application Form
Financial Aid and Scholarships
Helping Hands Keepsake Journal Form
Rett Syndrome and Mitochondrial Function Percy, March 2011
Rett Sleep FAQ
Pathogenesis of Lethal Cardiac Arrhythmias in Mecp2 Mutant Mice: Implication for Therapy in RTT
First Giving Instructions
Rett syndrome mutation MeCP2 T158A disrupts DNA binding, protein stability and ERP responses
A Lemonade Stand for Rett
Notable Award to Rett Investigator Dr. Monica Justice
Pediatric and Adult Preventive Care J Lane Conf 2011
Womanhood Lane IRSF June 2010
Behaviors E Tierney May 2009
Practice Parameter Drugs and Spacticity
Scoliosis Rett Syndrome 2009 Clinicians
Scoliosis Rett Syndrome 2009 Families
Nutrition Focus Nov Dec 2008
Gastroenterology Issues in RTT K Motil Conf 2011
Neurology RTT Glaze IRSF June 2010
Rett Sleep FAQ
Ideas for Logos and Themes
Sample Sponsor Letter
Time Line Template
NINDS Rett Workshop
Inside the IGF-1 Clinical Trial for Rett Syndrome WEBINAR
Notable Honors Awarded to Rett Investigators
“Mid Tech” Usage and the Literacy Assessment, Part 2 of 2
Making Eye Gaze Technology a Reality: The Road from Trials to Conversations
IEP Panel Discussion: Your Real-Life IEPs
Creating a Vision Handout
Creating a Vision
What Happens in Rett Syndrome at a Molecular Level: Epigenetics and Assay Development
Well Child and Adult Care Overview
Gastroenterology
Endocrinology
Enriched Environments and Best Practices
Current State of Translational Research
IRSF Welcome Address
Understanding RTT and other MECP2 Disorders
Understanding RTT - Dr. Alan Percy
Back to School Letter to Classmates
2012 Site Visit Schedule
October Educators Mailing 2011
The IRSF Event Starter Kit
How To Manual Strollathon
Chair Success Kit
Strollathon Sponsor Kit
Clint Black PSA Flier
TV IRSF FDV
Wild West Days
Picnic
Queen Creek
August 2011 Grant Awards
Can Rett Syndrome Be Reversed?
Rett Angels 2011
October Educators Mailing 2011
Revised RTT Diagnostic Criteria Neul ANA 2010
Clinical Diagnosis Revised Criteria Table 2011
Donations Agreement
Her Knight Misc Info
Her Knight
Application Content Checklist
Can Rett Syndrome Be Reversed?
2012 Site Visit Schedule
Portland 2011 Strollathon Poster
Roanoke Auction List 2011
2010 IRSF Audit
2010 IRSF 990
Exciting IRSF Studies in Motion - Investigators Pursue Potential HDA6 Inhibitor Rett Therapy
Press Release: IRSF Awards over $700K for Translational Research
IRSF Policy Statement on Research Support 2011
IRSF Awards over $700K for Translational Research
Nature Medicine
How to Host a Casino Night
Casino Night Idea
Smart Library
Queen Creek Horse Expo Poster
Fundraising Ideas A to Z
Bio Board Template
Team Captain Kit 2011
CT Golf Sponsor 2011
CT Golf Brochure 2011
Troy Golf Flyer 2011
Blue Sky Girls
A Lemonade Stand for Rett
2011 NJ Golf Brochure
2011 First Giving Instructions
2011 Tribute Reception Program
2011 Spike Rett
Network hyperexcitability in hippocampal slices from Mecp2 mutant mice
Vivint Voting Half Page Flyer - PDF Version
Understanding RTT - Dr. Alan Percy
3rd Annual Ceirney's Ride
IRSF Helping Hands Keepsake Journal 2011 060911
IRSF Conference Program Final 060911
2011 Attendee Directory 060911
IRSF Conference Program Final 052511
2011 NJ Golf Brochure
Chase Flyer
Chase Business Card Front
FAB 2012 Application
Information for Conference Attendees 2011 050911
2011 Conference Program 050911
IRSF Conference Program 2011 Preview
Information for Conference Attendees 2011
IRSF Family Support Overview
About Keira
MA Scholarship Information 040811
IRSF Conference Program Preview 040511
RTT and Mitochondrial Function
RTT Calcium Placebo Study - K. Motil
Scientific Review Board 032811
RTT Criteria
Keepsake Journal Form 2011
IRSF Conference Program 2011 Preview
HER Night Information Sheet
2011 IRSF Conference Program
IRSF Conference Scholarship Application 2011
2011 Conference Exhibitor Application
IRSF Helping Hands Keep Sake Journal 2010
2011 Conference Sponsorship Application
Application Form for 2011 Scholarship Fund
Information for Conference Attendees 2011
IRSF Translational Research Workshop Summary
IRSF Rett Gazette: Fall 2010
WV Proclamation 2010
AK Proclamation 2010
IL Proclamation 2010
KY Proclamation 2010
MD Proclamation 2010
MO Proclamation 2010
NC Proclamation 2010
NH Proclamation 2010
PA Proclamation 2010
TN Proclamation 2010
TX Proclamation 2010
VA Proclamation 2010
WI Proclamation 2010
The IRSF Gala Manual
2011 Team Captain Guidelines
IRSF Request for Applications 2011
IRSF Request for Applications 2011
2009 IRSF ANNUAL REPORT
Modeling Rett Syndrome with Stem Cells
A Model for Neural Development
Featured Angel: Sonora Poulton
2010 Cold and Flu
Accessing the General Education Curriculum
Fostering Friendships: Toddlers to Teens
IRSF Coloring Book w/o text
IRSF Coloring Book w/text
Julia Roberts Flyer
Clint Black PSA Flyer
Wipe it Out - Clint Black
2010 Nationwide Race Press Release
TX Childrens Awareness Night
TX Children's Awareness Night
Cannon Family Fundraiser
Scientific Review Board (SRB)
Pepsi Awareness Slips
Scientific Review Board (SRB) - 2010
IRSF 2009 Audit
IRSF 2009 990
IRSF Translational Research Workshop Summary
11th Annual Rett syndrome Symposium Summary
Implementing Effective Inclusive Practices by Robin Brewer
Nutritional Management of Children w/ Rett Syndrome by M. Stevenson, RD, CSP and M. Spring, OT
Importance of Raising Awareness and Funds: Research to Reality Campaign by K. Kissam and S. Bajardi
Research and Clinical Trials by Jeffrey Neul, MD, PhD, and Tony Horton, PhD
Genetics 101 by Steve Skinner, MD
How it Works
Spending Time Ending Rett - Sponsor Form
Spending Time Ending Rett - LA - Save the Date
Spending Time Ending Rett - LA - Auction Form
Holiday Inn Flyer
2010 Captain Kit
Pepsi: How to Vote
Eight Step Special Needs Planning
Eights Steps to Protected Tomorrows Handout
Integrating Eye Gaze Home School
Climbing the “Eye Gaze Technology” Mountain: Steps for Conducting Successful Trials
Shark For A Cure
Pepsi Refresh Custom Flyer
The Maturing Woman with Rett Syndrome: From Puberty to Menopause
What’s Going Right in the Brain
RETT SYNDROME 101
Keynote: The Power of the Powerless
Well Child and Adult Care Overview
Orthopedics and Scoliosis
Neurology for Rett Syndrome
Hippotherapy
Enhancing Communication: Regulating sensory input & Supporting Ease of Access
Cognitive and IEP Assessment Tools 101
IRSF Rett Gazette: Winter 2010
IRSF Rett Gazette: Summer 2010
About 2010 FAB Members
IRSF Helping Hands Keepsake Journal 2010
IRSF Conference Program 2010
Pepsi Refresh Campaign Flyer
2010 Conference Program
NJ Golf Outing 2010 - Save the Date - Back
NJ Golf Outing 2010 - Save the Date - Front
New Jersey Golf Outing 2010
IRSF 11th Annual Rett syndrome Symposium Agenda
1st Annual NJ Golf
Deleware Proclamation Signing 2010
Rockin Out Rett Syndrome PA
An Evening with Angels Invitation
2010 Conference Program
Information for Conference Registrants
Pikes Peak Thearapeutic Riding Center Tour
2010 Conference Program
2010 Information for Conference Registrants
2010 Conference Program
Sponsorships for the Small Business in Your Area
Captain List– Who can I ask to become Team Captains?
Strollathon Recipe for Success – Helpful Tips to Ensure a Successful Strollathon Each Year
2010 Conference Program
2010 Conference Program
2nd Annual Ceirney's Ride For Rett
2010 Information for Conference Registrants
2010 Helping Hands Program Journal Sonsorships
2010 Conference Program
2010 Conference Exhibitor Application
Tip to Raise Funds QUICKLY
Fundraising Ideas from A to Z
2010 Helping Hands Program Journal Sonsorships 2
Application Content Checklist
IRSF Translational Research RFP 2010
IRSF Request for Applications 2010
Research to Reality FAQ
IRSF Golf How-To Manual
Foard Golf Brochure 2010
Parent Technical Centers
Family Advisory Board Application 2011
2010 Conference Attendee Information
8th Annual Texas Rett Camp
Conference Scholarship Application 2010
2010 Conference Registrants Information
2010 Conference Program
2010 Conference Exhibitor Application
2010 Helping Hands Program Journal Sonsorships
IRSF Conference Program 2010
Information for Conference Registrants 2010
Conference Scholarship Application 2010
2010 Conference Logo
A Silent Angel's Story
For Clinicians: Scoliosis Leaflet
For Families: Scoliosis Booklet
Virginia State Proclamation
Sample Partner/Sponsor Letter 3
Sample Donation Letter 2
Sample Donation Letter 1
Sample Partner/Sponsor Letter 2
Sample Partner/Sponsor Letter 1
Sample Captain Letter 2
Sample Captain Letter 1
Louisiana State Proclamation 2009
Deleware State Proclamation
IRSF Policy Statement on Research Support
Florida Resolution Letter
IRSF 9th Annual Festival of Food and Wine: Auction List
Maryland State Proclamation
3rd Annual SRSA Bike Flier
3rd Annual SRSA Ride Flier
2009 Schwan IRSF Events
Colorado State Proclamation
IRSF Events
2009 Grant Funding Announcement
Alabama State Proclamation
The Rett Syndrome Handbook: 2nd Edition Table of Contents
Missouri State Proclamation
West Virginia State Proclamation
IRSF Informational Cards Templates
IRSF Info Cards Front
IRSF Info Cards Back
IRSF Info Cards
Mississippi State Proclamation
IGF-1 Funding - Boston Children's
2009 Write and Raffle 2
2009 Write and Raffle 1
Indiana State Proclamation
Illinois State Proclamation
Florida Letter of Recognition
IRSF Rett Gazette: August 2009
Julia Roberts Flyer
IRSF Brochure
Boston Globe Article
Rett Syndrome Awareness Flyer
Arkansas State Proclamation
Tennessee State Proclamation
PTC Therapeutics Announces Drug Discovery Collaboration with Roche
Kentucky State Proclamation
Texas State Proclamation
Pennsylvania State Proclamation
2009 Phantom Tea Order Form
IRSF Annual Report 2008
Reasons for Genetic Testing 2009
Montefiore Family Gathering
Casting 4 a Cure FLier
IRSF Scientfic Review Board 07.07.09
7th Annual Picture a Cure EJOURNAL
IRSF 10th Annual Scientific Symposium Agenda
10th Annual RTT Symposium Agenda
Hotels Near Conference
Hotels Close to Conference
6th Annual ACCA Golf
Research to Reality
IRSF ED Job Description
IRSF ED Job Announcement
2009 IRSF Conference Program
2009 Grant Application
2009 Post-Doctoral Fellowship Application
Avas Blues in the Barn
Strollathon Timeline Template
Items at IRSF Events
How IRSF Supports Events
2009 Fact Sheets
IRSF Tri-Fold Brochure
Important Information for Strollathons
IRSF Event Summary Form - Non-fundraiser
IRSF Event Summary Form - Fundraiser
Alan Percy Article
Clint Black Flyer
Julia Roberts Flyer
IRSF Strollathon Partnership Opportunities
IRSF Strollathon Captain Guidelines
2009 IRSF Strollathon Fact Sheet
IRSF Strollathon HOW TO Manual
2009 Conference Program
2009 Information for Conference Registrants
IRSF Fontaine Event
2009 Helping Hands Journal Form
IRSF Rett Gazette: Winter 2008
Non–cell autonomous influence of MeCP2-deficient glia on neuronal dendritic morphology
Boston Bruins Alumni Game Poster
2009 Sponsors Richmond
Rett Camp Information
Ava's Blues in the Barn
Helping Hands Program Journal Guidelines
2009 IRSF Conference Program
2009 IRSF Conference Scholarship Application
2009 Exhibitor Application
Information for Conference Registrants 2009
2009 Conference Sponsor Kit
Boilin' Good Time - Auction Data Sheet
Boilin' Good Time - Save the Date
Boilin' Good Time - Sponsor Form
Auction Teaser
Silent Auction List
Live Auction List
Unraveling the Mysteries of Rett Syndrome and the Brain
Awareness Month Flier
Blue Bird Rett Center: RTT Awareness Month
Pubs NeulNeuro Revise Final
Pubs JCN Ret Research Update
Pubs JCN North American Database
Have You Heard of Rett Syndrome?
Wipe it Out: Clint Black
The Rett Gazette - Summer 2008
Phantom Tea Order Form
A Message From Julia Roberts
A Day for Dani
IRSF FAB Application
Rett Syndrome Family Picnic
IRSF Annual Report 2007
Lemonade Stand for Rett Kit
World Rett Syndrome Conference Programme
Run4Rett
MCI Charity Golf Classic
Mecp2 Gene Dosage Effects
Spending Time Ending Rett
Drs. Glaze and Leonard Receive Awards
Session Neurology and Seizures Dr Dan Glaze May 2008
Stand for Rett
Symposium Agenda
Research update: RDCRN Natural History Study by Dr Alan Percy
Direction of Research: Gene therapy by Dr Carolyn Schanen
Genetics 101 by Dr Carolyn Schanen
Issues of Womanhood: Puberty through Menopause by Jane Lane, BSN, RN
Importance of Therapies by Dr Alan Percy
Calcium and Vitamin D Recommendations by Dr Kathleen Motil
GI and Nutrition Issues by Dr. Kathleen Motil
Rett Syndrome 101 by Dr. Alan Percy
Day to Day: Quality of Life Issues - Judy Barrish, BSN, RN
Effective Physical Therapy - Marybeth Finch, MSPT
6th Annual NYC Picture a Cure Benefit
5th Annual MI RTT Golf Classic, Dinner and Silent Auction
Poker Run Brochure
2008 4th Annual AZ RTT Charity Golf Tournament
Session Audio Recordings Order Form
Choosing best classroom option by Valerie Owen, Ph.D.
President Bush Signs Landmark Genetic Nondiscrimination Information Act Into Law
Conference - Pre-Registrant Information
Conference - Local Attractions
5th Annual Charity Golf Classic
3rd Annual Long Island RTT Golf Classic
Yard Sale for Rett Syndrome
Rett Gazette, Volume 1, Issue 1
2008 Conference Schedule [Revised 4-30-08]
4th Annual West Michigan Rett Syndrome Research Golf Tournament
Night of 1000 Angels
World Rett Syndrome Congress 2008
2008 Conference Schedule (Revised 4-18-08)
2008 Conference Highlights
Rett Syndrome Family Picnic
RS Paper Flags 2006 and 2007 Composite
Clinical Science Document
2008 Conference Schedule (Revised 3-24-08)
Partnership Program Application
Partnership Program Background Information
2008 Conference Brochure
2008 Conference Application
2008 Conference Program Schedule
2008 Conference Highlights
24th Annual Conference Partnership Prospectus
Silent Angels Gala RSVP
Silent Angels Gala Invite
2008 Annual Conference Exhibitor Form
Rett Syndrome Handbook TOC
2008 Conference Scholarship Form
2006 Symposium Summary
Application for Neurobiology of Rett Syndrome Letter
General Application Letter (2008)


Word Documents
Angel Awareness Card Template
Sample Press Release 2012
ORSAM Fundraising
Edu Network Parent Letter 2012
Welcome Back to School 2012
Daily Communication Log
Back to School Letter to Classmates 2012
September 2012 ANGEL Grant Application Packet
September 2012 HeART Grant Application Packet
September 2012 Regular Research Grant Application Packet
September 2012 Mentored Training Fellowship Packet
Other Research Support Template
Bio Sketch Sample 072012
Other Research Support Template
April 2012 HeART Grant Application Packet
April 2012 Angel Grant Application Packet
Certification Page
Signature Page
Budget and Justification Form
HeART Grant Application Packet 2012
ANGEL Grant Application Packet 2012
Sample Gala Sponsor Letter
Her Night Info Sheet
Sample Soliciation Letter
Sample Family Involvement Letter
Sample Captain Letter 2
Sample Captain Letter 1
Back to School Letter to Classmates
Angel Grant Application Packet
Conference Grant Application Packet
Heart Grant Application Packet
Regular Research Grant Application Packet
Regular Research Grant Application Packet
Post-Doctoral Fellowship Application Packet
Logos and Themes
IRSF Progress Report 2011
Back to School Letter
First Giving Instructions 081611
Bio Board Template 081611
Vivint Voting Half Page Flyer
Vivint Voting Awareness Cards Sheet
Angel Grant App 040611
Heart Grant App 040611
Conference Scholarship Application 2011
Educator Network Parent Letter
Calendar Form 2011
Educator Network Parent Letter
2010 Phantom Tea Order Form
Pepsi Flyer - 3 Ways to Vote
Pepsi Simple Flyer
Pepsi Sticker and/or Mailing Labels
Pepsi: How to Vote
Pepsi Envelopes
Pepsi Awareness Cards - Front
Pepsi Awareness Cards - Back
IRSF Sample PSA
IRSF Sample Press Release
Pepsi Refresh Custom Flyer
Pepsi Mailing Labels
Pepsi: How To Vote
Pepsi Refresh Custom Flyer
Pepsi Refresh Custom Flyer
ANGEL Grant Application Packet
HeART Grant Application Packet
Post-Doctoral Fellowship Application Packet
Regular Research Grant Application Packet
2010 Conference Scholarship Application
IRSF Progress Reports Template
Family Advisory Board 2010 Application
mailings
Regular Research Grant Application Packet
Post-Doctoral Fellowship Application Packet


Powerpoint Presentations
Rett Syndrome
Rett Syndrome 2
Gastroenterology for Rett Syndrome by Kathleen Motil, MD, PhD
Fundraising and YOU


Photos
Shark For A Cure
Sample email blast
Sample Post Card Mailing
post cards
awards
Gov. Bush Proclamation Signing
Ride for Rett 2009
Dirty Socks Funtime Band


 

 

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