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Rett Syndrome has garnered some BIG support from some BIG stars!

Right NOW

IRSF is proud to announce the official release of the song, Silent Angels, by Ayme Sanchez on the IRSF Facebook ifan store!

Ayme Sanchez is a singer/songwriter who has been an important advocate for Rett syndrome with the release of her song, Silent Angels, which she wrote in honor of our beloved Rett angels. “Silent Angels is about holding on to hope,” said Sanchez. “It's about believing in possibility no matter what your challenges may be. It's about breaking down barriers. The impossible can very much become possible. The powers of belief and faith can move mountains and create change as long as you never give up.” Sanchez has been a significant force in gaining awareness for Rett syndrome with her song.

Silent Angels
by Ayme Sanchez

Meet Ayme Sanchez
  1. What brought you and Lee together to write it?
    Lee and I have always enjoyed the collaborative approach to songwriting and have written many beautiful songs together both before and after the creation of Silent Angels. Our songs have also always told a story. When I chose the parent perspective in telling the story for this song, I knew one of the messages would be encouraging the joining together of others for a greater cause. This choice made me want to join together with another to write so it was natural for me to ask Lee if he wanted to be part of the creation of the song.

  2. What do you hope this song does for the listener?
    I hope listeners will be inspired to make a difference. I hope parents will feel that their voice is being heard. Even though I'm not a parent (yet!), I work within the special needs community each and every day, and I understand and have witnessed families' many battles, triumphs, struggles and fears that come along with raising a child with special needs. So, I do hear the parent voice and I strongly believe it needs to be heard. Rett children are angels; Parents and families are heroes fighting for the rights of their children. At the root of it all...what we want is for our children to be safe, healthy and loved.

  3. What do you hope this song will accomplish?
    I hope this song is able to reach listeners all around the world because the song tells a very important and inspiring story. I hope Silent Angels creates and spreads awareness for the Rett cause. I also hope to raise more funds for research through the sales of the song.
"I am so pleased and humbled by the fact that this song has served the foundation and the Rett cause so well since the initial release. I feel honored to have consistently received feedback from parents and advocates around the world who have shared how much the song means to them, how deeply it has moved them, and how it has helped them cope with their child’s challenges and needs." - AYME, singer/songwriter and special needs advocate

Rett Syndrome Supporters

Clint Black
Country music sensation Clint Black, whose niece Courtney lost her battle with Rett syndrome in 2003 at age 16, serves as Honorary Chair of the Research to Reality campaign. The foundation hopes to raise $3-5 million in proceeds, over and above its annual $2.5 million research budget, for scientists at major institutions who are committed to Rett syndrome research and other neurological disorders.

"At this pivotal time, I am honored to serve as chair of this important campaign to help accelerate treatments and a cure of Rett syndrome," said Mr. Black. "My family has experienced first-hand the devastation caused by this neurological disorder, and I am eager to support the exciting research on the horizon that can help reverse Rett syndrome." Clint Black, along with his brother Kevin, will host a kick-off concert and golf tournament for the campaign in The Woodlands, Texas, on November 1-2, 2009.
Jean-Marc Genereux & France Mousseau
Champion ballroom dancers and choreographers Jean-Marc Genereaux and wife France Mousseau have been supporters of IRSF for years. Hit TV show “So You Think You Can Dance,” enlisted the help of the top choreographers to create dances for the contestants. Jean Marc Genereux and his wife France, shared the story of their daughter, who has Rett syndrome, through dance.









Julia Roberts
Movie star Julia Roberts has been an avid supporter of the fight against Rett syndrome for years. Roberts narrated the award winning internationally broadcast documentary about the courageous families and determined researchers who took it upon themselves to find some answers about this devastating neurological disorder.


Angela Martin
Singer Angela Martin, a past contestant of American Idol, has a daughter with Rett syndrome named Jessica. Martin has preformed in support of Rett syndrome and is a true advocate for the cause.

Martin made it to the Hollywood round of the show, but wasn't selected to continue on to the final competition. Kara DioGuardi has agreed to write a song for Martin. As announced on The Ellen DeGeneres Show, DioGuardi and DeGenerous have committed to helping you young mother and singer obtain her dream of getting a record deal!












Vera Zvonareva
2010 Wimbledon finalist and 2006 champion, Vera Zvonareva, an avid Rett syndrome supporter, serves as an international ambassador for Rett syndrome and spreads awareness around the world when she travels to tournaments. She became familiar with Rett syndrome after her best friend's daughter was diagnosed.


 

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