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Regional Representative - Kansas |
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Contact Information
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State
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Name
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Email
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Phone
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Kansas
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Shannon Stoiber
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This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
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913-393-0747 or 913-302-7498
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Biography
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I have two wonderful kids. My daughter, Alyssa, who is 8 and I have a 2 year old son, Jace. When Alyssa was diagnosed at 2 1/2 with Rett Syndrome, I have made it my mission to make sure that other families affected know that they are not alone and we can be there to lean on one another. I have learned to live everyday to the fullest and never give up hope for our girls.
They truly are blessings!
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Events
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Fundraisers
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Family Gatherings
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2010 1st Annual Strollathon
September 25,2010
Lenexa, ks at Sar-ko-par Park
87th and Lackman Rd.
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Family Picnic
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Support Groups
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Miscellaneous Events
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State Specific Information and Services
Recommended Professionals
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Doctors
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Therapists
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Children's Mercy Hospital - www.childrens-mercy.org,
Neurology department is great.
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Theresa Peterson and her team are wonderful.
Children's Mercy also.
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Schools
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Miscellaneous
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The Olathe School District currently has 3 girls and has served 4 all together.
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Hippotherapy-Heartland and there is a few more available.
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The professionals listed above have been added by individual Rett families. IRSF has not performed any background research on these individuals and in no way endorses any opinion on the professional expertise or experience of the listed individuals. The inclusion of any professional on this list does not indicate a recommendation or referral by IRSF or its staff.
Helpful Hints and Personal Messages
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Unique Ideas and Suggestions
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Messages from Individual Regional Reps
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Local Families
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