Contact Information
| State | Name | Email | Phone | | Nevada (Northern) | Evie Lynn Swan |
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| | | Biography | A few of my numbers … IRSF Nevada Co-Rep. – 1 year. Married to David – 27 years. Mother to Erik – 25 years. Mother to Annie – 22 years. Annie’s diagnosis of Rett syndrome – 14 years ago. Our families in the Silver State – 25.
“Far and away the best prize that life offers is the chance to work hard at work worth doing.” - Theodore Roosevelt
I am grateful for the opportunity to work with you “at work worth doing.”
"Peace does not mean to be in a place where there is no noise, trouble or hard work. It means to be in the midst of those things and still be calm in your heart." – Unknown
Life doesn’t have to be perfect to be great! I believe that together we can stand taller, find answers, and otherwise find peace. | |
Events
| Fundraisers | Family Gatherings | October, 2011 – Strollathon
| Summer Picnic - Saturday, June 4, 2011 at Noon. Rancho San Rafael Park, Reno, NV. Peavine Pavillion.
| | Support Groups | Miscellaneous Events | Facebook – “Nevada IRSF Rett Syndrome Families”
| October proclaimed Rett syndrome Awareness Month by Nevada's Governor and Secretary of State, Ross Miller, who joined families in Reno for a photo. | |
State Specific Information and Services
| Information and Links to State Resources | Nevada Department of Health and Human Services
http://mhds.nv.gov/ (Scroll to bottom for Developmental Service Agencies or see below.)
Sierra Regional Center (SRC)
605 South 21st Street
Sparks, NV 89431-5599
(775) 688-1930
Hours: 8:00 AM to 5:00 PM Monday-Friday, except State Holidays
Rural Regional Center, also known as RRC, is a Nevada state agency that provides services to children and adults living in rural counties of Nevada. Intake services are located in the main Carson City office. Satellite offices are located in Elko, Winnemucca, Fallon, and Silver Springs. RRC supports people and families to take a leadership role in their personal and community lives by partnering with a variety of providers and services.
Rural Regional Center
1665 Old Hot Springs Road, Suite 157
Carson City, NV 89706
Telephone: (775) 687-5162
Fax: (775) 687-1001
Hours: 8:00 AM to 5:00 PM Monday-Friday, except State Holidays
Elko Office
1825 Pinion Road, Suite A
Elko, NV 89801
Telephone: (775) 753-4236
Fax: (775) 777-7884
Fallon Office
151 North Maine Street
Fallon, NV 89406
Telephone: (775) 423-0347
Silver Springs Office
3595 Highway 50 West, Suite 3
Silver Springs, NV 89429
Telephone: (775) 577-4077
Winnemucca Office
475 West Haskell
Winnemucca, NV 89445
Telephone: (775) 623-6593
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Recommended Professionals
| Doctors | Therapists | Family Practitioner -
Kristen Nork, MD
Janice Bryant, Nurse Practioner
Renown Health Medical Group/
South Meadows Family Care
10085 Dbl. R. Blvd.
Reno, NV 89521
982-4910 or 982-5000
www.renown.org
Pediatrician -
Dr. Daniel T. Colombo
1500 E 2nd Street, Suite 103
Reno, NV 89502
324-0766
Pediatric Gastroenterologist –
Juan Gregory, MD
Nurse: Kim
880 Ryland Street
Reno, NV 89502
329-4600
Gynecologist –
Dr. Sherrie Hald (Asst: Jenna)
Ob/Gyn Associates
645 N. Arlington Ave., Suite 400
Reno, NV 89503
www.obgynreno.com
329-6241
M-Th. 8:00 a.m. – 4:00 p.m. Closed Noon – 12:30 p.m.
Friday 8:00 a.m. – Noon.
Cardiologist –
Dr. Frank Carrea
Sierra NV Cardiology Asso.
75 Pringle Way, Suite 401
Reno, Nevada 89502
775-688-8000
Orthopedist–
*Not spine.
Dr. Travis Kieckbusch
Sierra Orthopedics
645 N. Arlington St., Ste. 655
Reno, NV 89503
333-5555
Dentist –
The Smile Shop
Dr. Michael Stoker
3701 Baker Lane, #1
Reno, NV 89509
825-1000
Neurologist –
Dr. Mindy C. Schwartz
10085 Double R. Boulevard 330
Reno, NV 89521
322-9000
Dermatologist –
Dr. R. Riley
6630 S McCarran Blvd.
Suite 9-A
Reno, NV 89509
829-1212
| | | Schools | Miscellaneous | The Marvin Picollo School
(A public school for preschool – 22 year-old special needs students.)
900 Foothill Road
Reno, NV 89511
851-5650
| Northern Nevada’s Closest Rett Clinic and Study Site:
(They see children and adults.)
Katie\'s Clinic for Rett Syndrome
Dr. Mary Jones, Director
Developmental and Behavioral Pediatrics
Children\'s Hospital and Research Center in Oakland (CA)
5220 Claremont Ave
Oakland, CA 94618
Contact: Pat George, Clinic Coordinator
510-428-3885 Ext 2302
| | The professionals listed above have been added by individual Rett families. IRSF has not performed any background research on these individuals and in no way endorses any opinion on the professional expertise or experience of the listed individuals. The inclusion of any professional on this list does not indicate a recommendation or referral by IRSF or its staff.
Helpful Hints and Personal Messages
| Unique Ideas and Suggestions | Messages from Individual Regional Reps | Did you know there are now a variety of support groups through IRSF? In addition to RettNet there are groups for grandparents, fathers, and more! Contact me or Jennifer Endres for more information.
Animal Ark Wildlife Sanctuary
1265 Deerlodge Road
Reno, NV 89506
1-775-970-3111
www.animalark.org
| If you are looking for information, support, or a strong shoulder, please contact me. I look forward to getting to know you!
Reach out and we’ll laugh and cry together. If we can’t find the answers, together we’ll find someone who does. You can be as involved as you like or not, but please know you are not alone.
Top Five Goals for 2011:
• Four Reno family get-togethers.
• Statewide mailing to all pediatricians.
• A successful October Strollathon in Reno.
• A physician, nurse, etc. awareness event in Reno.
• Obtain a state proclamation for Rett syndrome awareness month.
What would you like us to work on?
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Local Families
Evie and Annie, with Nevada Secretary of State, Ross Miller, and Stephanie and Chelise, October, 2010
David, Erik, and Annie, with Nevada Secretary of State, Ross Miller, and sweet Chelise
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