Now more than ever we must work together to get to the light at the end of the tunnel. Help IRSF Turn Research into Reality.
Working in concert with the NIH and our respected Scientific Advisory Board, IRSF has set a $5 Million goal in specific short and medium term strategic research initiatives . IRSF asks you to embrace this goal and help us raise awareness and these crucial funds. Thousands of girls and women with Rett syndrome are counting on you to brighten their future. To learn more about Research to Reality and for materials promoting this campaign please click here.
An aggressive $5million campaign designed to accelerate research progress
$5million goal set in concert by the NIH and the IRSF Scientific Advisory Board
Chaired by country music sensation, Clint Black – who lost his niece to Rett syndrome
This campaign launches with incredible videos, ads, and matching funds!
Public Service Announcement (PSA) by Research to Reality campaign chair country music star Clint Black and IRSF – thousands with Rett syndrome live in our communities. Even more are still misdiagnosed with Cerebral Palsy, autism, or developmental delay.
WHAT CAN I DO TO SUPPORT THE IRSF RESEARCH TO REALITY CAMPAIGN?
Use any of these materials to support your fundraising and awareness efforts:
Distribute the PSA and/or the mouse ad to your local online media outlets and major network affiliates – be sure to include your personal story and connection to Rett syndrome
Post the PSA, the mouse ad, the “Silent Angels” Ayme Sanchez song, and/or an IRSF Research to Reality campaign widget to your website, blog, Facebook page, and event websites, including all FirstGiving online fundraising pages
Promote the PSA to your child’s physician groups, therapists, educators, service agencies and advocacy teams
Encourage friends, co-workers, businesses, contacts, and other Rett families to participate in these simple ways:
Email everyone you know about this campaign and why it’s important to you
Download the Research to Reality logo or widget and add it, along with the following statement to your email signature, blog, website and/or Facebook status page: "Visit www.rettsyndrome.org and show your support for my child [a child I love] [my granddaughter] with Rett syndrome"
Contact IRSF and let us know of your interest – we will help coordinate your efforts, your messaging, and informational materials
Clint Black PSA Download
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IRSF Research to Reality campaign video - by IRSF and Clint Black (4min) Download
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Audio
Public Service Announcement (PSA) - by Research to Reality campaign chair country music star Clint Black and IRSF – thousands with Rett syndrome live in our communities. Even more are still misdiagnosed with Cerebral Palsy, autism, or developmental delay. Right Click on this link and "Save As" to download the Audio MP3 version now!
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Your Help is Our Hope
26th Annual Family Conference
Research to Reality Campaign
Thousands with Rett syndrome are counting on you to brighten their future.
Your help is their hope.
And right now, every dollar raised could be matched!
Research to Reality QA document
