A select group of Rett syndrome professionals who have committed to advise IRSF and support fellow professionals on important issues, the Professional Advisors for IRSF represent top experts in their fields, many of whom have made significant contributions to the area of Rett syndrome.
Areas of expertise include primary and subspecialty areas in medicine, nursing, social work, education and literacy, physical and occupational therapy, speech and augmentative communication, family therapy and legal issues. Their advice and consult ensures that the information distributed by the IRSF remains the most trusted source for Rett syndrome care practices and recommendations worldwide for families and professionals.
|
First Name
|
Last Name
|
Degree
|
Area
|
|
Chhavi
|
Agarwal
|
MD
|
Endocrinology
|
|
Judy
|
Barrish
|
RN
|
Nursing
|
|
Art
|
Beisang
|
MD
|
Neurology, Child
|
|
Sudge
|
Budden
|
MD
|
Developmental Pediatrics
|
|
Linda
|
Burkhart
|
|
Communication
|
|
Carmen
|
Cuffari
|
MD
|
Feeding Specialist
|
|
Kristie
|
Cullum
|
RN
|
Hospice and Palliative Care
|
|
Aleksandra (Sasha)
|
Djukic
|
MD, PhD
|
Neurology, Child
|
|
Mary Anne
|
Ehlert
|
CFP
|
Special Needs Planning
|
|
Karen
|
Erickson
|
PhD
|
Special Education and Literacy
|
|
Marybeth
|
Finch
|
MS
|
PT
|
|
Greg
|
Gates
|
PhD
|
Autonomic Function Specialist
|
|
Suzanne
|
Geerts
|
MS, RD
|
Dietician
|
|
Belinda
|
George
|
RPh
|
Pharmacist
|
|
Howard
|
Geyer
|
MD
|
Movement Disorders
|
|
Dan
|
Glaze
|
MD
|
Neurology, Sleep, and Epilepsy
|
|
Peter
|
Heydemann
|
MD
|
Neurology, Child and Epilepsy
|
|
Christopher
|
Hug
|
MD
|
Pulmonologist
|
|
Christina M.
|
Iyama-Kurtycz
|
MD
|
Developmental and Behavioral Pediatrics
|
|
Mary
|
Jones
|
MD
|
General Pediatrics
|
|
Terry
|
Katz
|
Ph.D.
|
Psychology, Sleep
|
|
Omar
|
Khwaja
|
MD, PhD
|
Neurology, Child
|
|
John
|
Killian
|
MD
|
Orthopedics
|
|
Shuei
|
Kozu
|
LICSW
|
Social Worker
|
|
Jane
|
Lane
|
RN
|
Rett Syndrome and Women's Issues
|
|
Judy
|
Lariviere
|
Med
|
Communication and Occupational Therapy
|
|
Darcy
|
Minsky
|
LCSW, MS
|
Social Worker
|
|
Kay
|
Motil
|
MD
|
Gastroenterology
|
|
SakkuBai
|
Naidu
|
MD
|
Neurology, Child
|
|
Susan
|
Norwell
|
MS
|
Communication, Literacy
|
|
Valerie
|
Owen
|
PhD
|
Special Education
|
|
Alan
|
Percy
|
MD
|
Child Neurologist
|
|
Will
|
Rabke
|
JD
|
Attorney
|
|
Diane
|
Ross
|
MS
|
Family Therapy
|
|
Aloysia
|
Schwabe
|
MD
|
Rehabilitative Medicine
|
|
Kenna
|
Seiler
|
JD
|
Attorney
|
|
Jay
|
Shapiro
|
MD
|
Endocrinology
|
|
Steve
|
Skinner
|
MD
|
Genetics
|
|
Laurie Lou
|
Smith
|
MS
|
Special Education
|
|
Jennifer
|
Swain
|
MS
|
Physical Therapy
|
|
John
|
Thornton
|
DMD
|
Dentist
|
|
Elaine
|
Tierney
|
MD
|
Psychiatry and Neurobehavior
|
|
Robert
|
Wagner
|
MD
|
Neurology, Adult
|
|
Christine
|
Walsh
|
MD
|
Cardiology
|
|
