What You Can Do To Help
We need your help!!
Please take the time to make an appointment with your Congressman or Senator, or send a letter today!!
The IRSF Advocacy Tool Kit
What to do and How to do it
- Find your Congressman and Senators
www.house.gov
www.senate.gov
- Make an appointment!
· All Senators and Representatives have multiple “district” offices
· Call the “main” office (NOT the one closest to where you live, but the one in the biggest town in your district or state)
· Ask to speak to the District Director
· Tell the District Director who you are and that you are calling to request a meeting with the Congressman/Senator
· In many cases they will want you to meet with staff. This is fine, but insist on meeting with the District Director
· They may ask for a request for the meeting in writing.
· A sample letter to request the meeting is attached
· Talking points for the meeting are also attached
- Write a letter (or deliver one at your meeting)
·Use this sample letter for you to deliver at your meeting.
· Or, send this letter if you are unsuccessful in getting a meeting with the Member or staff
· This letter explains what you are asking the Congressman/Senator to do (and this is in the talking points as well)
· This letter explains what you are asking the Congressman/Senator to do (and this is in the Talking Points as well)
· There are several critical points in time in the Congressional funding cycle. We may ask you to write at these different times with a slightly different message depending on the status of the legislation. Check our website for updates and new sample letters.
- Ask others in your family or community to write
· Members of Congress and their staff pay attention to volume
· If they get multiple letters on this issue, they will pay attention
· They can use the same sample letter
- FOLLOW-UP – with staff
· Call the staff you meet with back every 2 weeks or so to ask for an update on your request.
· Staff will pay attention to a squeaky wheel
- Write a letter to the editor of your local paper
· To raise awareness for Rett Syndrome, consider writing a letter to the editor of your local paper
· Make sure you mention your local Congressman or Senator’s name and our request in your letter
- Send us a copy of your letters and any responses or feedback you get from members of Congress so we can track our success.
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