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What You Can Do To Help

We need your help!!

Please take the time to make an appointment with your Congressman or Senator, or send a letter today!!

The IRSF Advocacy Tool Kit

What to do and How to do it
  1. Find your Congressman and Senators
    www.house.gov
    www.senate.gov
  2. Make an appointment!
    · All Senators and Representatives have multiple “district” offices
    · Call the “main” office (NOT the one closest to where you live, but the one in the biggest town in your district or state)
    · Ask to speak to the District Director
    · Tell the District Director who you are and that you are calling to request a meeting with the Congressman/Senator
    · In many cases they will want you to meet with staff. This is fine, but insist on meeting with the District Director
    · They may ask for a request for the meeting in writing.
    · A sample letter to request the meeting is attached
    · Talking points for the meeting are also attached
  3. Write a letter (or deliver one at your meeting)
    ·Use this sample letter for you to deliver at your meeting.
    · Or, send this letter if you are unsuccessful in getting a meeting with the Member or staff
    · This letter explains what you are asking the Congressman/Senator to do (and this is in the talking points as well)
    · This letter explains what you are asking the Congressman/Senator to do (and this is in the Talking Points as well)
    · There are several critical points in time in the Congressional funding cycle. We may ask you to write at these different times with a slightly different message depending on the status of the legislation. Check our website for updates and new sample letters.
  4. Ask others in your family or community to write
    · Members of Congress and their staff pay attention to volume
    · If they get multiple letters on this issue, they will pay attention
    · They can use the same sample letter

  5. FOLLOW-UP – with staff
    · Call the staff you meet with back every 2 weeks or so to ask for an update on your request.
    · Staff will pay attention to a squeaky wheel

  6. Write a letter to the editor of your local paper
    · To raise awareness for Rett Syndrome, consider writing a letter to the editor of your local paper
    · Make sure you mention your local Congressman or Senator’s name and our request in your letter

  7. Send us a copy of your letters and any responses or feedback you get from members of Congress so we can track our success.

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