Providing accurate, well-organized, sincere support, information and referral services is the number one goal of the IRSF Family Support staff for all families, from the day they begin searching for a diagnosis through coping with day-to-day care issues after the diagnosis and beyond. The highly respected Family Advisory Board (FAB) consults with the IRSF staff on these priorities.
IRSF Family Advisory Board members are active, passionate, committed volunteers who have a family member diagnosed with Rett syndrome and a desire to affect change on behalf of those living with Rett syndrome. They have both personal and professional skills to best represent and advise the IRSF staff and Board of Directors on issues affecting all families touched by Rett syndrome. They also serve as representatives of IRSF, promoting IRSF’s vision and mission to the larger Rett syndrome community.
The standard term of service for the Family Advisory Board is three calendar years in length. Members can serve up to 2 consecutive terms of service. They are welcome to reapply for board service once they roll off for at least one term. The option to reapply for a second consecutive 3-year term is possible if conditions of service were successfully met in the first term.
Questions? Contact Paige Nues, IRSF, Director of Family Support, at
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or 1.800.818.RETT (7388)
Meet your 2012 Family Advisory Board members
APPLY BY OCTOBER 19, 2012 FOR A 2013 FAMILY ADVISORY BOARD POSITION
 FAB 2013 Application 62.25 Kb
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