Research to Reality

Your help is our hope! The mission of IRSF is to fund research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome. This mission has always been our priority, but the challenge has never been so high, nor the potential reward so great.

IRSF, working in concert with the NIH and our Scientific Advisory Board, has set a goal to fund a minimum of $5million in specific short and medium term strategic research initiatives. IRSF invites you to embrace this goal and help us raise awareness and these crucial funds. Thousands of girls and women with Rett syndrome are counting on you to brighten their future.

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Take Action

Access our Advocacy Tools and help raise awareness.

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Donate Now

Planned and Online Giving, Major Gifts Campain, Matching Gift Program and Care and Cure Café

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Fundraising and YOU

"Getting involved with fundraising was the most therapeutic thing we did as parents when we received our daughter’s diagnosis—we felt good knowing we had control over something related to Rett syndrome." ~ Jennifer, MA

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Store

Informational Resources, T-Shirts, Mugs, Hats, Totes and Ties!

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Regional Representatives Program

The Regional Rep Program has been established to provide emotional support, information and resources to families affected by Rett syndrome. It has become an integral part of IRSF. The program has greatly expanded over the past year, appointing approximately twenty-five new Regional Reps throughout the country.

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