“Getting involved with fundraising was the most therapeutic thing we did as parents when we received our daughter’s diagnosis—we felt good knowing we had control over something related to Rett syndrome.” ~ Jennifer, MA
Receiving the diagnosis of Rett syndrome is not easy. Often times it is a sad and dark period, until everyone adjusts to life and decisions are made about how to proceed. Everyone is different and will cope in various ways…some will decide being proactive is the best route to take. Planning an event and fundraising are two of the most proactive avenues one can venture down. They can be time consuming and hard work, but promise to be rewarding and help to bring comfort and healing. Contact the understanding, helpful and supportive staff today at the International Rett Syndrome Foundation. We are here to help you heal!
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If you are a returning participant, you may see some exciting changes online – some of our fall locations are using our NEW registration and fundraising system. By 2013, all of our Strollathons will be using this new system. Don’t see an event in your area? It might have happened in the Spring or it may just be waiting for a great volunteer to take the lead. Contact
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, Manager of Special Events, for more information.
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It can range from 100 guests to 700 guests and can be a country-western
themed party or a fancier up-town feel! In 2009 IRSF families and
friends hosted 4 large scale Galas and about 8-10 smaller scale Galas
which totaled almost $2Million!! If you are interested in hosting or
helping to plan a Gala in support of IRSF contact us! We have materials
for a successful Gala already created and can help you host a
spectacular event in your community!
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 We have many avid golfers in our IRSF family! Hosting a Golf tournament is a great way to raise funds for IRSF while having a great time with fellow golfers and friends.
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 Communities all over the map are hosting smaller walks and runs in support of IRSF. Whether it's a 1 mile walk, a 5K run or even a motorcycle ride we welcome your ideas and efforts! Check out these walk, rides and runs for Rett! These can range anywhere from a 1K to a triathlon! Whatever you would like to plan, IRSF can support you!
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 There are many ways to help support IRSF’s mission – whatever the event we are here to help make it easy for you to plan and host the event of your choice.
Check out some of these “Helping Hands” fundraisers that families are participating in all over!
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