Charting the Course for Rett Syndrome – World Congress 2012
Just a short month ago, over 500 people from over 20 countries convened in New Orleans to face the future and Chart the Course forward for Rett Syndrome research and care. IRSF was pleased to host this exceptional event with the support of worldwide partners, organizers, sponsors, speakers, and exhibitors. It was quite magical to have such incredible and transformative discussions and debates happening under one roof and at every turn amongst the scientists, researchers, families, and clinicians who care so much about Rett syndrome, MECP2 and CDKL5 disorders. Friendships were made, personal and professional relationships advanced, and the course forward has been fueled thanks to everyone’s concerted efforts.
We hope these materials will allow you to experience or revisit some of the World Rett Syndrome Congress highlights:
WORLD CONGRESS PROGRAMS
Reading the Programs from the four meetings really are the best way to catch the cutting edge topics presented and discussed, especially from the Science and Research portion of the Congress. Many of the Family sessions were also recorded and will be available soon for distribution.
PHOTOS
KEYNOTE FAMILY ADDRESS: MICKIE MCCOOL
- As a special thanks, and motivation to you, please enjoy this complimentary audio link to parent Mickie McCool’s keynote welcome address (18min 30sec). Please share freely, it will be available on demand for about the next 90 days, and Mickie invites you to find her on Facebook
- Audio link
- Other webcast and audio sessions from the many family sessions will be available for purchase and on-demand access shortly
ONLINE PHOTO ALBUM
- We are compiling photos from our volunteer photographers and will be sharing many of them as an online album soon. If you were in New Orleans, please send in your best pictures to
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so we can add them to this album for all to enjoy.
MEDIA ATTENTION
Thank you WWL-TV CBS affiliate and WGNO ABC affiliate for recognizing the significance of this event. Watch replays here:
Visit worldcongress.rettsyndrome.org for additional information as event photos, session slides, handouts, and information will be made available in coming weeks.
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FOR IMMEDIATE RELEASE
Media Contacts:
Kathryn Kissam
IRSF Board of Directors
(804-519-6231)
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Stephen Bajardi
Executive Director, IRSF
(203-722-6195)
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International Rett Syndrome Foundation Names Steven G. Kaminsky, Ph.D
Chief Scientific Officer
CINCINNATI, OH: January 20, 2012 – The International Rett Syndrome Foundation (IRSF), the world’s largest and most comprehensive not-for-profit organization that funds novel research for treatments and a cure for Rett syndrome, has announced Steven G. Kaminsky, Ph.D. as its new Chief Scientific Officer. Dr. Steven Kaminsky, former vice president for research at the Uniformed Services University in Bethesda, Maryland, is joining IRSF on January 23rd to lead their aggressive scientific research agenda. Dr. Kaminsky has a long distinguished career serving at a senior level for several universities and as a program officer at the National Institute of Health (NIH). With his extensive leadership experience and connections, one of Dr. Kaminsky’s first major initiatives will launch more effective relations between IRSF and federal agencies including the Food and Drug Administration (FDA) and the NIH to promote further support for Rett syndrome research. He will also collaborate with IRSF’s Scientific Advisory Board, Medical Advisory Board and other noteworthy investigators to sharply focus IRSF’s future research program in basic and translational research.
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IRSF Awards over $700,000 for Translational Rett Syndrome Research
For Immediate Release-August 17, 2011
Contact Kathryn Kissam (804) 519-6231
The International Rett Syndrome Foundation (IRSF) announced today that it is awarding over $700,000 to support nine cutting-edge projects that aim to accelerate translational research to develop treatments for Rett syndrome. IRSF is the world’s largest private source of funding for biomedical and clinical Rett syndrome research. Since 1998, IRSF has cumulatively funded over $24M in high quality, peer-reviewed basic and translational research grants that have significantly advanced Rett syndrome research towards finding a cure.
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Network hyperexcitability in hippocampal slices from Mecp2 mutant mice revealed by voltage-sensitive dye imaging
Gaston Calfa, John J. Hablitz, and Lucas Pozzo-Miller
J Neurophysiol 105: 1768–1784, 2011.
Contributed by Dr. Lucas Pozzo-Miller
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