International Rett Syndrome Foundation (IRSF)

Living With Rett Syndrome

Daily tips for day to day living with Rett syndrome
Read more...

Explaining Rett syndrome to a young audience

These wonderfully simple downloadable Coloring Books (one with text, one images only) will help you explain Rett syndrome to young and old audiences alike, but will especially help siblings, classmates, neighborhood friends, and others in your life accept your child for the wonderful person she is.
Read more...

Entering Adulthood

Our girls age just like any other, these are just a few tips to help you through the process
Read more...

The Mature Rett Woman

If you're the parent, relative, friend or caregiver of an adult Rett woman, you face special challenges. You will worry about her care, her health and her future.
Read more...

Family Matters

FamilyMatters is a series of topical questions posed to various IRSF online Rett communities by the IRSF Family Advisory Board (FAB). Our goal is to tap into the vast wisdom of parents and caregivers who most often are the best resource for solutions to the practical, common, day-to-day issues, concerns and dilemmas we all face. The community answers will be summarized here for everyone's benefit. We hope you find this interesting and helpful, and we invite you to submit additional responses or tips to This e-mail address is being protected from spam bots, you need JavaScript enabled to view it .

Help for the Caregiver