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New Diagnosis
Do You Think Your Child Has Rett Syndrome?
What is Rett syndrome?
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Have You Just Received Your Rett Syndrome Diagnosis?
We're here to help! IRSF has set up a Regional Representative Program to provide emotional support, information and resources to families affected by Rett syndrome. If you're in the United States, please contact the Rep in your state TODAY!  If you are not located in the US, please contact the organization closest to you.
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Where to Now?

Have you just received your Rett syndrome Diagnosis?

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The Rett Syndrome Handbook
This is the book that every parent, grandparent, teacher, therapist, doctor, and caregiver needs to have! Anyone in the life of a loved one with Rett syndrome should own a copy of this amazing book (called by many the "Rett Syndrome Bible").
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Welcome from Rett families

Let these letters serve as your first introduction to families in the world of Rett syndrome.  These letters were written by Rett syndrome parents for the newly diagnosed Rett syndrome parent. They will welcome you into the community and wish you the best on your journey.

Welcome on behalf of the Board and Staff of the International Rett Fyndrome Foundation. You have reached the right place for help and support on your journey caring for your loved one with Rett syndrome. IRSF is only as strong as the families and friends who support us.  If you need anything please contact us at 1-800-818.RETT.  We are here to help, and we understand.

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Sign Up for More Information
We would like to provide you with IRSF's resources as we know how difficult it is to receive the diagnosis. Please enter your information and a member of our Family Support Team will contact you shortly.
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