Event: 'Blue Sky Girls'

General

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Date: Saturday, October 13, 2012 At 10:00:00 AM

Contact Info:

Jennifer Lopez 347-640-2671 Program Coordinator

Email: This e-mail address is being protected from spam bots, you need JavaScript enabled to view it

URL: http://www.einstein.yu.edu/departments/neurology/neurology.aspx?id=34420

Blue Sky Girls

Blue Sky Girls is an international, multi-site, ground breaking annual event designed to increase awareness of Rett Syndrome, a devastating neurological disorder on the Autism Spectrum, affecting 1 in 10,000 girls.

Each year in October the Blue Sky Girls host an event that is celebrated at multiple sites around the world. The purpose of the event is to celebrate Rett Syndrome Month and the strength and will that girls with Rett Syndrome have shown to keep going no matter the odds and the difficulties they face every minute of their lives.

Climbing stairs is a symbolic gesture, because climbing takes you upward and forward even if it is difficult. We are completely aware that many girls might not be able to climb stairs but they can try and then get help. In New York City we asked firemen to help us to bring our girls to the top when they need help.

There will be groups of girls all around the world participating in similar events in their own countries and cities. We would love for you to spread the word and help us get more countries to participate in unison with this worldwide event.

To become a Site Chair, please contact Dr. Sasha Djukic rett@montefiore.org
To register to participate, please contact Jennifer Lopez retted@montefiore.org
To become an Event Sponsor for Blue Sky Girls, please contact Dr. Sasha Djukic rett@montefiore.org