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Regional Representative Application Page
Thank you for your interest in the IRSF Regional Representative Program! Each Regional Rep plays an important role in the lives of those affected by Rett syndrome. The Regional Rep team is comprised of compassionate and dedicated individuals who support the families within their state. If you are interested in getting to know and assist families, please apply today! For more information on the program contact Jennifer Endres at jendres@rettsyndrome.org.

Each Regional Rep will be encouraged to contribute in the following areas:
  1. Provide information and emotional support to families
  2. Reach out to new IRSF families
  3. Plan at least one yearly get-together for the families
  4. Support and encourage efforts to raise funds for treatments and a cure
  5. Promote public awareness of Rett syndrome
  6. Attend the annual conference when possible
  7. Maintain his/her IRSF partnership
All Regional Reps will receive the following:
  1. IRSF Regional Rep Manual
  2. IRSF educational material and literature
  3. Emotional support
  4. IRSF stationery, envelopes and business cards
  5. Planning assistance
  6. $300 per year reimbursement for postage, telephone calls, meeting expenses, etc.
  7. Satisfaction of knowing you are helping other families
Fill out the form below to apply:
General Information
Name
Mailing Address
Email
Phone Number
Connection to Rett syndrome
Length of Involvement with Rett syndrome community
I am comfortable fulfilling the responsibilities outlined in the introduction letter?
Are you able to serve a two-year term?
Short Answers
Why are you interested in becoming a Regional Representative?
What skills and strengths do you posses that will be beneficial to your local Rett syndrome community?
What approaches would you take to maintain frequent contact with your community and to keep them informed on recent RTT news?
Regional Representatives are frequently asked to contact local parents with various inquiries/requests. This requires making some long-distance phone calls. Are you comfortable with making these calls at your own expense?
Regional Representatives are encouraged to raise awareness and promote fundraising for Rett syndrome within their communities. Describe how you would go about doing this.
Is there any additional, useful information that you wish to provide?
Please provide the name and contact information of one personal reference.
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