Newly Diagnosed?

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Join RettSyndrome.org

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Family Resources

Local Resources

What's in your state? Parent-approved resources for Rett families.

Find your state

Rett Syndrome Handbook

Called the “Rett Syndrome Bible”, all the information you need for your journey

Purchase a hard copy

Find your State Rep

Connect with a parent volunteer to learn about the resources in your area.

Find your representative